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Thread: Update: Saw the doc this morning!

  1. #31
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    Did u get the results of the tpmt test yet?

  2. #32
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    Nikki,are you still taking pred also ? Because I read you are not supposed to take ibuprofan with pred. But maybe you are sick because of mtx withdrawal ??????
    Life isn't about how you survive the storm, but how to dance in the rain !

  3. #33
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    No TPMT results yet. I am patiently waiting. I got my myeloma results. Those are fine so my cancer remains in remission, that's always good news in the middle of everything.
    I have to stay late tonight at work because someone called in sick. This makes me very upset because I feel so horrible. Oh well.
    Officially Diagnosed 07/31/2013

    My blog: http://nikkinicolealison.com

    "It's no use going back to yesterday because I was a different person then" - Alice in Wonderland

  4. #34
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    I am not on any prednisone. I have only been off the mtx for 3 days. I just feel like everything gets a little worse every day.
    Officially Diagnosed 07/31/2013

    My blog: http://nikkinicolealison.com

    "It's no use going back to yesterday because I was a different person then" - Alice in Wonderland

  5. #35
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    Quote Originally Posted by NikkiNicole View Post
    I am not on any prednisone. I have only been off the mtx for 3 days. I just feel like everything gets a little worse every day.
    I am not sure how long the active metabolite of mtx lasts, but I'm sure it is longer than 3 days.
    That is good news that the cancer is in remission and pray it always stays there.
    Your dr didn't have you on prednisone while you wait for the maintenance?

  6. #36
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    I've 3 prednisone tapers. There never was really any improvement with the prednisone.
    Officially Diagnosed 07/31/2013

    My blog: http://nikkinicolealison.com

    "It's no use going back to yesterday because I was a different person then" - Alice in Wonderland

  7. #37
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    My specialist once mentioned to me that NSAIDs (Non Steroidal Anti Inflammatory Drugs) should be avoided as much as possible while on Prednisolone.

    The interaction between orally administered non-steroidal anti-infl... - PubMed - NCBI

    "These findings suggest that the combination of NSAIDs, even selective COX-2 inhibitors, with prednisolone may be contraindicated due to the potential for serious adverse effects on the kidneys, the platelets, and the gastrointestinal tract."

    TANSTAAFL, YMMV, etc

  8. #38
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    Aside from the mysterious liver issue, it all sounds good, Nikki! And you are on the right track with the diet.
    Anne, dx'ed April 2011

  9. #39
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    Quote Originally Posted by NikkiNicole View Post
    I've 3 prednisone tapers. There never was really any improvement with the prednisone.
    My mom has MPA and she never got any improvement with prednisone either.
    It is interesting that weg's folks usually have a good response to prednisone.

  10. #40
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    Hi Nikki,
    Any news, yet if you can start the imuran or not?

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