This forum provides an amazing amount of support and information. I hope this is a only a temporary setback. Take care.
This forum provides an amazing amount of support and information. I hope this is a only a temporary setback. Take care.
Belated Welcome Stephanie.
It appears we are about the same age, I was 22 back in 2000 when I got Dx'd.
I hope that things start turning more in your favor soon, I know I am one of the luckier ones that after I went into remission I haven't ever gone back on a treatment plan for Wegener's so it is possible.
It looks like you are getting some good responses for leads in finding more specialists to help you out.
Glad you found the "group"
Dx'd December 2000
My doctor is Stanley Naguwa, MD, with UCDMC in Davis @ the Cowell Blvd facility. However, he is retired and is probably not taking new patients. He has stayed on a very minimal basis to keep a handful of his "special" patients, but he has trained another rheumatologist to take over his other patients. If I can find out her name, I will let you know.
Stephanie R
Diagnosed 1/2007
currently on the old-school treatment of cellcept and prednisone
Welcome to the gang
And yes it is like a family
Good times , bad times & love / support / advice
We are here for you & all of us
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