Originally Posted by
vdub
We are veering a little off topic, but I think the current generally acceptance incidence rate is 1 in 30,000. However, I think that ratio is falling -- not because more people are getting wegs, but because the ability to diagnosis the disease is getting better.
From a local study of Wegs patients from 1980-2000 they said the number of patients increased more than they could explain with better diagnostics. So even though its easier to diagnose someone now than a few decades ago (like due to ANCA-markers which were found quite recently) there still seems to be more new weggies than before and haven't really heard any explanation why that is.
Originally Posted by
gilders
I do sometimes feel guilty when I've been away from the site for a while because Wegener's hasn't been at the front of my mind. The reason for the guilt is that whenever I return there's still people who are always here ready to help and then I think I should be here all the time to help people out.
Please don't feel guilty! I'm sure you get reminded of Wegs way too often, no way should you need to check in to a weg-forum if you don't feel like it. On the contrary, forgetting about this disease for a while is quite relaxing (although its a bit difficult to forget it when taking pills 3x per day).
Diagnosed 08/2013, Relapse 07/2014, Relapse 5/2017 (although early signs of it from 12/2016)
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