I know my doc wants me off the prednisone. I get that.
But what's going to make this taper any better or more successful than the others?
I like my rheumy - she's pretty cool. But I don't get her sometimes. My last appointment with her, I went through all my symptoms again - and some were better and some were the same - and at the end she says, "Well, you're asymptomatic, so I'm not going to put you on anything stronger. And let's bring you down on the prednisone." Um... I just got done telling you about all my symptoms, and I'm asymptomatic? Really? I know I'm doing ok, but my eyes occasionally have pain, my hearing is still fluctuating, still have blood in my nose, night sweats are back, joints hurt on and off and now I'm having tendon issues. So, let's go down on the prednisone and I'll see you in three months.
Wait. I'm a bit confused...
So, I've got a second opinion scheduled. And this guy had his residency at Mayo in Rochester. From what I've heard, he's the best chance I have at getting a authorization from my insurance to go to Mayo Clinic. I gave it a year. And my patience is gone. I want them to figure out what's going on. I know that I'm not as bad as a lot of people. I know that. But it doesn't mean I want answers less.
Anyway, wish me luck on the taper. Because I've been at 9mg (from 10) for two weeks and it's not going well. We'll see how I am at 8 in a couple of weeks. Last time, I flared almost immediately at 7... (sigh) And I'm already at 20mg of methotrexate.
Sorry, I didn't mean to complain in this post. Just kinda happened.
Jen
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