I just ran across this on Facebook. Vasculitis Patient Advocacy Network - Doctors-United States
It lists docs with experience in vasculitis, including many we haven't heard of in states we didn't know had them. And they are looking for additional names of docs recommended by patients. The top well-known experts are still singled out as being available for free consultations. The site is for patients worldwide and seems like a very good resource not only for info about docs but for vasculitis info in general..