Quote Originally Posted by mishb View Post
They asked on all of the facebook groups regarding vasculitis support and wegeners etc, for anyone with doctors that are familiar with WG and could put on the list, for referring to newly diagnosed people who enquire on the VPAN site.

They have been working on it for quite a while and have administrators from USA, Canada, UK and even Australia.
That's great to know, Michelle! I guess I had heard of them but had forgotten or something. I became a member.... and there are only 11, so I encourage others to join, not sure what the result of that would be, but it seems there may be a forum on the site for members. It's cool when these grass roots efforts start to go somewhere!