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Thread: Doctors - Sydney, Australia

  1. #31
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    Timbo,
    Thanks for the words of wisdom. I too have trouble "relaxing". I want to be on the move constantly! I just finished filling all the online paper work for the Mayo in Rochester,MN. Hopefully my ENT there will be able to direct me down the correct path. Although, feeling fine, I know that the connection with Mayo will be a great asset.
    Lets have virtual coffee sometime
    LIsa

  2. #32
    Doug Guest

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    Quote Originally Posted by katwoman View Post
    I do have a referral for the Immunologist, just waiting to hear back, apparently there is a team that valuates patients and then classes them on urgency before appointment is made, hopefully hear back from them next week.

    I totally need to do a list, like you I go blank with not only how I have been feeling but also the questions I wanted to ask.

    I have an appointment on Monday with Rheumy, I already know that it will be back on meds, to date all I have been taking is Bactrim. Part of me was hoping that if I went to Immunologist he would tell me no need for Pred - that's probably wishful thinking I know.
    It's been mentioned bore , but please go to this link for a list of questions weggies need to ask their doctors (some or all!) It'll save you a little time, I think.

    Front Page | Vasculitis Foundation

    Go to Newly Diagnosed (at the top left of the page, second item in the brown highlighted section), then, on the righthand side, go down to the section titled About Vaqsculitis: Our Online Resources. Seven items down from that heading, you'll see Questions to Ask Your Doctor. I'm sorry I'm posting this so late- possibly too late, for it to be of use to your for this doctor's visit, but the information is helpful for all subsequent visits and doctors. I wish I'd been online on this site yesrterday or the day before! Good luck on your examination!
    Last edited by Doug; 11-30-2009 at 02:52 PM.

  3. #33
    Doug Guest

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    Quote Originally Posted by coffeelover View Post
    Timbo,
    Thanks for the words of wisdom. I too have trouble "relaxing". I want to be on the move constantly! I just finished filling all the online paper work for the Mayo in Rochester,MN. Hopefully my ENT there will be able to direct me down the correct path. Although, feeling fine, I know that the connection with Mayo will be a great asset.
    Lets have virtual coffee sometime
    LIsa
    Good for you! It can only be a blessing to live nearly in Mayo's backyard~!

  4. #34
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    Front Page | Vasculitis Foundation

    Go to Newly Diagnosed (at the top left of the page, second item in the brown highlighted section), then, on the righthand side, go down to the section titled About Vaqsculitis: Our Online Resources. Seven items down from that heading, you'll see Questions to Ask Your Doctor. I'm sorry I'm posting this so late- possibly too late, for it to be of use to your for this doctor's visit, but the information is helpful for all subsequent visits and doctors. I wish I'd been online on this site yesrterday or the day before! Good luck on your examination![/QUOTE]

    Thanks Doug, I will check it out and print off copy (if u can do that) so I can have for future visits, it will be good for the immunologist anyway - which by the looks won't be until the new year. My visit to Rhuemy was better then I expected, he usually is very vague and just says were going to do this and this, but he was easier to talk to and actually for the first time asked what i thought we should do..wow but then said what the best options were and so we come to a mutual decision - which is the way it should be.

  5. #35
    Doug Guest

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    Katwoman- sometimes it takes awhile, but most doctors can be housebroken! Ha! Sounds like your are doing what needs to be done h=to have a fruitful doctor-patient relationship. You already are strarting to see what an improvement that is! Good for you!

  6. #36
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    This RH doctor specializes in WG. He is AWESOME and I had excellent care and results while being treated by him for 5 years for WG. I've sinces moved to Los Angeles and wish I can clone him here.
    Dr. Harry Patapanian 9796-1192 this is his office number in Bankstown, but he also has an office in Chatswood area.

  7. #37
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    Quote Originally Posted by andrew View Post
    I think you'll find that surgery on anything like Saddle Nose that has been caused by WG is generally done when the patient is in remission as it gives the best chance of success. Not 100% on that one but fairly sure.

    I'm in Canberra. I'll give my WG doc a call tomorrow and ask for a recommendation. I'll pass it on to you. Where exactly are you located?
    Hi Andrew,

    I just saw you are in Canberra. Who is your WG doc?

  8. #38
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    Hi, my dad is in Wollongong and just not happy w his care. Do you know of any specialists who have successfully treated wegs patients as he is not tolerating the maintenance drugs Imuran I think and his dr not overly proactive in finding more. Any recommended DES in Sydney or Wollongong would be appreciated. Thanks malissa

  9. #39
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    Hi Malissa,
    Has your dad been able to find suitable care. When I first became ill with WG I was visiting my brother in Wollongong, the doctor on call at the hospital in Wollongong base hospital that ended up treating me was a Rheumy called Dr Roman Jaworski, I found him very good with me and when I finally left hospital he continued to treat me in Wollongong until the meds were correct and then referred me to a Rheumy in my local home town.
    Let us know how your dad goes.
    kat

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