Well cry no more, you are safe now here with us. I was terrified when I was first diagnosed, searched Google and got terrified even more. Found this site and now feel "normal', in a Weggie sort of way.
Terry
I am so glad to hear you say how much better you feel since finding the forum! I remember being shy at first about posting and introducing myself, but it didn't take long to feel like one of the family. What a great group of people who happen to have this dumb disease!
Anne, dx'ed April 2011
Thank you so much! This has really put my mind at ease. It's really been a rollercoaster of emotions. I thought I only had a few years to live, based on internet info, but now I know that's not true.
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I know what you mean about not having normal days. We have what we call the "new normal", once we get the most severe stages under control with meds. But there is hope that the new normal will improve, too. After 3.5 years, I finally got a really good blood test result showing my inflammation level to be completely normal. I still have days when stress gets the better of me and symptoms creep back, especially fatigue, which may always be with us to some extent. And I'm still on meds. But overall, the best ever since dx despite some pretty stressful stuff in my life right now.
Anne, dx'ed April 2011
That is the problem with the internet and medical diagnosis. Don't believe all you read,
With this disease, we are all writing our own books as we go along. None of us are the same in diagnosis, symptoms, lifestyle, etc. Hang in there and let us help you with consulting for your book, and let you doctors help you co-author the book too.
MikeG-2012
"You never know how strong you are until being strong is the only choice you have"
Thanks to all the posters on this thread. Like you Gigi, I am new to this and fairly overwhelmed and confused. It's good to read positive, hopeful remarks - thanks to all of you who have been riding this train for years and welcoming the frightened new passengers. (And Merry Christmas to all of you in the Dec. 25 time zone!)
Merry Christmas to all too
On the crazy Wegners train however severe
Thank God for this site & everyone's advice
🎅🎄🎅🎄🎅🎄
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