If you're looking for excellent care for GPA/Wegener's, Cleveland Clinic is worth checking out. I see Dr Alexandra Villa Forte there, and I think she's tops. Others on the forum see Dr Carol Langford, who would be strongly recommended as well.
Before you go, you should prepare a complete history of your experience with the disease. My first appointment with Dr Villa Forte lasted almost two hours. My follow ups (every six months) take 30-45 minutes depending on my issues and questions. I always take a written list of questions and a copy of my latest labs.
Good luck!!
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
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