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Thread: From undiagnosed to climbing Mt. Everest!

  1. #541
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    It's odd that UC is still classified as a rare disease. It's so well-known.

  2. #542
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    Quote Originally Posted by Sangye View Post
    It's odd that UC is still classified as a rare disease. It's so well-known.
    I'm sure I know at least a few dozen with UC.
    Phil Berggren, dx 2003

  3. #543
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    Thanks for the info vdub. I had no idea.
    I was checking his race standing and then I saw he scratched
    Maybe he will run again next year and both of us can carry the NORD Banner across the finish line!!!!

  4. #544
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    Quote Originally Posted by Sangye View Post
    It's odd that UC is still classified as a rare disease. It's so well-known.
    Is this the same as Crohn's disease? Did Crohn get relabeled too like Wegener?

  5. #545
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    UC is similar to Chrons but not the same.
    Phil Berggren, dx 2003

  6. #546
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    Default Vasculitis Awareness Month

    Hi Everyone.

    Today is the first day of Vasculitis Awareness Month and the Vasculitis Foundation is asking people to help spread the word. So I will be giving by "My Journey" presentation Saturday, May 5th at 5 PM. Location: A16 in West Los Angeles. It would be great to meet some of you if can attend. Here is the link for more information Events - Adventure 16, Southern California's Outdoor Experts.

    Take Care.
    Cindy

  7. #547
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    Probably won't make it, Cindy, but I will put in a plug for your book, which I enjoyed a lot. You are an intrepid one, for sure...!

    Al

  8. #548
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  9. #549
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  10. #550
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    Quote Originally Posted by Cindy View Post
    I just return from Alaska. Went up to see my "pups" and raise more awareness.

    Fairbanks Daily News-Miner - Extreme dream Cindy Abbott trains for Iditarod to raise awareness of rare disease

    Great article about a great girl on a great mission. Great Job!!!

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