From undiagnosed to climbing Mt. Everest!

**elephant** · 01-16-2010, 05:01 AM

Wow Cindy! That is great! Thank you so much from the bottom of my heart and all your effort to get this WG out nationally! I sent you an extra push when you climb, just incase you get worn out.

**Cindy** · 01-20-2010, 04:02 AM

I am working hard to get the word out! I have had three interviews in the past few days and another one is being completed. When I get the links to the stories I will post them. I just hope the reports cover the story correctly: you just never know if they are going to put a "twist" on it.

Off to get blood work

**Sangye** · 01-20-2010, 04:10 AM

Cindy, in the video from a few weeks ago (Calif news) I noticed 2 things they said that should be corrected in future interviews. They called Wegs a terminal illness. It's a potentially life-threatening illness, but not definitely.

Also, they said the joints become damaged over time. Even after severe inflammation and pain in the joints, they're not actually damaged as in RA, gout, Lyme, etc.... There's no mechanism for joint destruction in Wegs.

It's hard to control what the final interview will look like-- just thought I'd throw these corrections out there in case you're asked.

Bet you're getting pretty excited, though!

**elephant** · 01-20-2010, 05:13 AM

Hey Cindy, thanks again! Hope your blood work is good news. Keep up the great work!

**Cindy** · 01-20-2010, 06:53 AM

Sangje, Yes that is exactly what I meant! They added the "terminal" thing for drama and I have no editing rights. I do the interview and they edited into what they want. This last interview I HOPE will be more accurate but . . . . Expect for adding "drama" I think the reports hearts are in the right spot.

**Sangye** · 01-20-2010, 11:13 AM

I figured they might have "drama'd" it up. As if Wegs alone isn't drama enough?

**Cindy** · 01-26-2010, 04:11 AM

Here are some more media releases

1. This is the same story on two different locations (both are linked to your story).
This is the Mt. Everest 2010 climbing blog that will follow everything that happens on Everest this climbing season http://www.alanarnette.com/news/archives/363
This is on on-line publication http://outside-blog.away.com/blog/alan_arnette.html

2. Also, it is in the Cal State University Daily Titan Ailing professor aims to climb Mt. Everest|Daily Titan

I will let you know when it comes out in the OC Register and Guideposts.

I know, I know - they all take on the drama but that is what they do - and if it helps us get attention and money for research - so be it!

**Lightwarrior** · 01-26-2010, 04:34 AM

Cindy,
One of my best friends who is a medical librarian (every Nurse Scientist should be so lucky to have a medical librarian as a close friend) sent me an article written about your journey. Good luck, I'll be cheering for you!!