Hi everyone,

I've been feeling poorly since the beginning of October (VERY tired, missing work, lower right back pain, frequent headaches, nose bleeds, huge and gross crusties in my left nostril). The crusties and nose bleeds have been going on for about a year, the lower right back pain since July and headaches gradually getting more frequent with time. I've been to a few different internists with fatigue complaints- I've thought the crusties were super gross but thought maybe it was just uber allergies. Yesterday I had my regular checkup, ready with a page full of symptoms. I wasn't going to go home without some further investigation- I'm convinced my suffering is not normal and I think it goes beyond my diagnosed depression. My regular doc found blood in my nostril so she sent me to the ENT specialist and I'm having a sleep study next week (I feel the need for sleep every chance I can get). The ENT had this troubled look on her face as she's digging out the nose crust, saying "it almost looks like..." I said "What?" getting anxious. She replied "Wegeners. Not to say you have it at all, but you have a lot of crusting. Wegeners is an autoimmune disease" to which I replied "Oh, I have an autoimmune disease- Scleroderma of the skin." This caused her to be tempted to give me a blood test right away. She decided against it, and I'll see her in a month for follow up. I'm upset now that I didn't request the blood test. A month wondering about this thing that some resources say 5 months untreated and you're a goner. That would be in February and my next appt. is January. I've called the doc but she's only there one day a week. I was told a nurse would call me back- it's been 8 hours. I called my primary doc and left a message requesting the blood test. No response or order yet. Should I be worried? Should I keep calling until I get somewhere? Or should I wait a month? I'm in pain (head, arms, lower right back, sinuses, weakness) but not to the point of what I've been reading from others- I haven't been hospitalized or to the point of crying and unable to sleep. But it's enough to worry with the chronic pain and epic nose monsters. I thought I had MS (my aunt has it) but when I told a doc in October she looked at me like I was being a hypochondriac. She cared, I know, but it was close enough to a scoff- I'd be grateful to be diagnosed with "something" so I can start getting it treated. Thanks for caring and reading this!