Hi all, I was diagnosed in August this year. I have reduced from 50mg Prednisone and now down to 20mg. I am taking 150 mg Cyclophosphamide (Endoxan) plus Bactrim DS (160/800) Mon, Wed, and Friday. Now all of these I have read about on this Forum. However, I am also taking Mesna (uromitexan 600 mg) half a tablet (300 mg) daily. As far as I am aware, this is to protect my bladder from the cyclo. Does anyone else use this drug? It is very expensive and there does not seem and end in sight for stopping or reducing it. I have just been issued with three more months worth. I am sorry if this has all been asked before, but I am still struggling to come to terms with all this extra medication. I am also a diabetic (type 2) but taking insulin because of the prednisone. I am asthmatic, have hypertension and a stent inserted in an artery around my heart. I have osteoarthritis and have had a spinal fusion and a double hip replacement. Now I have swollen feet and legs and leaking fluid from my legs,and am taking lasics morning and evening to try and get rid of the excess fluid. It is all very uncomfortable and every day I tired and feel drained very quickly. Exercise, even walking can be tedious and difficult. I feel like I am a walking chemical factory, so I guess I am just asking for some explanations, possible time frames, other peoples personal experiences. If I have learnt nothing else from this forum is that we all experience Wegener's in different ways and different degrees. Is there a kindred spirit out there somewhere? I am also sorry that I have no idea how to tag this thread. (Sorry about the incorrect spelling of Mesna in the title)
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