Hi Morning,
My mom doesn't understand her disease at all and I try to explain everything including all the research I do and her blood tests.
She has MPA and had one 1.5gm infusion of cytoxan, skipped a week and 4 infusions 1 week apart of rtx, but didn't have a good response on the kidney and lung function.
Her Rheumy, that we just saw on Dec 3rd, said that the 4 infusions is the old way and consults with Carol Langford regularly.
The 2 infusions 2 weeks apart is what he said is the standard now.
I assume the heavy dosings may work faster, but not sure.
I have alot more questions now and should make another appointment with him.
I will ask her nephrologist to see if he will do the T + B-Lymphocyte Differential test and if he doesn't, I'll ask her rheumy.
Thanks for your thoughts!
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