New member (Bek) just joined this website

[Jayne 14]

Bek
I have rugby shaped eyes not football shaped - always have had
It's called astigmatism and mine isnt Wegs related
My vision when I'm tired isn't so great but never thought it was connected to our great disease !


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[Bek Stone]

Jayne
Yeah that's it that's what the dr called it I couldn't remember lol but my eyes changed to to that because my eyes have always been perfect before I got WG just thought it was a little werid talk about an unpredictable disease lol

[Jayne 14]

It is weird our disease !!
My doctor was worried mine had gone to my eyes but the C T showed it hadn't , just destroyed my nose & in my gums .
And so far I'm responding well to treatment
I really hope 2015 means good news for us all !!


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[miracleshappen08]

Wow Jayne14!! It is weird and the places that it hits is weird!
I had a ct scan done this past Friday. And I saw the doctor yesterday. The report was bad and nothing we expected!!
I'm glad that you are responding to treatment!!!
It has destroyed my nose and my whole right sinus cavity. It has eaten most of the bone and it has started eating my eye socket. If not stopped it will continue to eat through stuff and start in my brain. I was shocked yesterday!! I'm hoping we can find a treatment to work for it.

[Jayne 14]

I really hope they find a cure rather than remission from this cruel disease
Let's hope, Miracleshappen 08



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