Becky, your doc is not helping at all. In fact, seems resistant. Sooo, it may be time to start searching if he's not going to take any advice/help from others. The Vasculitis Org is always very prompt in responses to people's requests for help, so he's had a bad experience or doesn't know what he's talking about. Whether you have WG or not is not the issue right now...the right doc(s) can help you, he obviously can't or isn't. As for your frustrations, they are a part of the cycle of the AI diseases it seems. No one can help you properly, so the symptoms continue...time to move on to a new doc m'dear. Best to you.