Hey All-
I've been seeing a rheumatologist and a neurologist since spring of 2012 when I was hospitalized with difficulty breathing and loss of sensation on my left side. My doctors have thought I've had, sarcoidosis (my dad has it), celiac disease, pernicious anemia, lupus, MS, and have sort of settled on undifferentiated connective tissue disease recently. Other than a positive ANA, and a neurological diagnosis of myelitis...my doctors don't seem to know what is going on with me. I've had ultrasounds of weird large swollen bruises that appeared mysteriously on the web of my hand and in my elbow that were inconclusive. I've had a couple chest xrays that showed that there night be something going on in my lungs but my chest CT was negative for sarcoidosis but showed "a few subpleural opacities which are nonspecific.One for example measuring 2 x 3 mm is seen in the periphery left upper lobe/lingula on 2/98. Findings suggest minimal scar"..whatever that means. This spring my Dr thought I might have a CSF leak because of the massive amount of watery discharge pouring out of my nose, but my neuorologist concluded it was a cyst in my sinuses. I had been free of any serious symptoms for almost a year but got the flu a few weeks ago and after I got better had a major "flare" ...I've been coughing up small amounts of blood for a week and am seeing the Dr. tomorrow. I came here because I was googling autoimmune conditions where people cough up blood and saw Wegener's...I probably just have pneumonia or some thing but I thought I'd post here to see if my history sounds familiar to anyone...just trying to get myself sorted out....many thanks
-j
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