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Thread: I got referred to UCSF

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    Default I got referred to UCSF

    Going to see dr Katherine Yung for consult on my sub glottis stenosis. Does anyone have any information on her expertise ?

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    Dr. Sharon Chung is on Vasculitis Foundation from UCSF. I am sure they work together, good luck.
    Dale
    Dx Aug, 2009 Remission June 2010 until 8/1/2014

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    Wishing you all the best.
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


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    Yes dr Chung returned my message and gave me her name and number so I'm sure she is good. I'll let everyone know. Thank you for the well wishes

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    Hi Darren,

    How did you get on? I've just been referred to UCSF. I've been sick for two years and I'm desperate for a diagnosis.

    Nicola

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    Nicola, UCSF has a very good reputation for vasculitis care, and I'm sure this will be a positive move for you! If you indeed have WG, I hope you soon get the dx you need.
    Anne, dx'ed April 2011

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    I had a wonderful experience with UCSF Dr Katherine Yung did laser and dilation on my subglittic stenosis on 12/2/14 and I feel amazing. Dr Sharon Chung returned my phone call and referred me to her. If you need to see a a Rheumatologist go see dr Chung. I hear she is great.


    P.O.W.E.R. Positive ongoing waves encourage remission

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    Thank you both, at this point I just want to know. I've been on 30mg Prednisone for two months and it's helping, but I'm still struggling. I feel everything is on hold until I can get a dianosis, whatever it is.

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    Prednisone won't stop it from it's continued destruction. You will need to be on immunosuppressive medication I sure hope you get a diagnosis pronto. Keep pushing to get In to be seen it's so important to move fast because if it's WG the aftermath scarring and damage is so difficult to deal with. So the sooner you get treatment will help to cut down on the scarring. Good luck to you.


    P.O.W.E.R. Positive ongoing waves encourage remission

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    Quote Originally Posted by Ncr1980 View Post
    Thank you both, at this point I just want to know. I've been on 30mg Prednisone for two months and it's helping, but I'm still struggling. I feel everything is on hold until I can get a dianosis, whatever it is.
    Any news on getting a diagnosis?


    P.O.W.E.R. Positive ongoing waves encourage remission

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