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Thread: prescription pain meds

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    Default prescription pain meds

    Is there any medical reason why prescription pain meds cannot be used when taking Weg meds? For instance, hydrocodone with prednisone and rituxan?

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    I am a patient with a pain clinic and the doctors recommend OxyContin and oxycodone. In fact my doctors have said not to take Advil, Tylenol or Aspirin because of the side effects. My one doctor often complains that those meds with the least side effects are used the least because of bad publicity. I have very small doses so I can take only what I need. My doctor also always says it takes twice as much to get rid of pain than what it takes to keep it away. In other words don't wait until you are in pain. Take a constant dose at regular intervals and you can be mostly pain free.

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    Thank you Donna. I have shared this with my daughter. I think she needs to have a discussion with her doc about this.

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    When I was first reducing pred and got below 20mgs I awoke in the early morning one night and walked the floor for the rest of the night with pain in my sinuses. My face was aching, my teeth were aching. I was climbing the walls. I contacted the ENT as soon as his rooms opened in the morning and he prescribed Lyrcra. It did nothing. Actually tried lots of pain meds and nothing helped (not the opiates) The last resort was to increase the pred back up to 60mgs. I was not happy about this as I had put on so much weight but at that point I did not care, The pain just had to go....and go it did within an few hours. What a relief that was. I stayed on the 60mgs for a few days and then started to reduce. I reduced much quicker this time than I did before as the shorter time you are on the high dose the quicker you can reduce. So I was back to my 20mgs within about 10 days and then continued with the slow reduction. 6 years have passed since then and I have never experienced that intense sinus pain again.

    Rose

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    I agree after awhile you know your pain and there are times when nothing works better than a quick dose of high prednisone and then come back down. It's like sometimes you need to go up hill so you can go farther down hill. I am "blessed" with all kinds of pain from all kinds of issues. Nerve pain from prednisone induced diabetes and from a radical surgery. Migraines from Lymes disease and having to have radiation in my brain, WG pain that includes joints, face sinuses. A bad knee from a motorcycle accident from my mid-spent youth etc. I kept a pain journal and studied my pain. I try to figure out what helps and what doesn't. I have found that regularly moving and then resting in a different position helps. Sleeping in a recliner if my sinuses are killing me. Getting enough sleep. Eating healthy and drinking enough water. Stretching and massages and hot baths help for a short while. Laughter really helps, doing something for someone else (I knit and donate the items). Stress, worry, feeling sicker and being depressed or anxious makes pain worse. Good luck in finding what works.

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    WG Mom,
    I am currently taking pain meds Oxycontin and oxycodone, it is prescribed to me by my PCP. In addition to Wegs, I have Fibromyalgia, Costchondritis in my ribs, COPD, neuropathy in hands and feet. Then there is the nerve damage from the shingles in my breast and back that lasted for over 10months. I'm on 15mg of Preds, always trying to taper, when I get to 10 I have a flare and have to up it which is destroying my shoulder joints and my knees. I have been on all the immune suppressant so far and am currently on 2000mg per day of Cellcept, Bactrium and Rtx infusions every six month. I think it is safe to say that if your daughter is in pain her PCP should be able to give her something and it may be just temporary that she would have to take them. Best wishes to your daughter to live a better pain free life.
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


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    I can't take NSAIDs like Ibuprofen. I'm not sure why, but its an interaction with one of my other drugs.

    However, I do have a whole host of other pain drugs that I pick and chose from as needed. My normal routine is 100mg 3x day gabapentin and 100mg 3x day of tramadol. However, I also have hydrocodone and oxy. I hardly ever take the oxy, but I swap out the tramadol for hydro maybe once ever 2 weeks. It depends on how much pain I have. Tramadol and the gabapentin usually keep me relatively pain free.

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    Thanks for all your responses and good wishes. My daughter's doc has said he is reluctant to prescribe a narcotic pain med to younger patients (she is 25). From the reports of many, I believe it would help. She does not have an addictive personality and she is a highly responsible young women. Think we shall press the issue. It's one thing to tough out pain when there is no other option; it's another when there may be a solution.

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    Was told I shouldn't use Ibuprofen due to kidney involvement, and pretty much the only other over-the-counter med avaible is parcetamol which does nothing for me. So the doc prescribed me some pills with codein (a fairly mild opiate I guess). I think I've only needed to take one, as I'm lucky to not be in any pain - but its nice to have them in case I have a nasty head ache or something.
    Diagnosed 08/2013, Relapse 07/2014, Relapse 5/2017 (although early signs of it from 12/2016)

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    I am currently on durogesic patches and endone (with food when needed because if I take it without food it makes me sick) as I have difficulty with pain meds because im allergic to morphine and codine. When my migranes have been extremely bad my mother was giving me prescribed pethidine needles (shes a nurse so its all ok) which seemed to help but the specialist suggested deximethidine needles (im not quite sure if that's spelt right) but its a kind of steroid and it seems to work a whole lot faster and better but thats for last case scenarios to keep me out of hospital and I haven't had to have one since December last year so im on a good streak at the moment. Just thought I'd mention it incase anyone elsr has issues with pain medication like me. And as I'm sure most of you on here with WG I have a very very high pain tolerancy so when I need these needles its really bad. Hope this is useful to anyone else but obviously id talk to your specialist first.

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