Hello everybody!
I have just discovered this forum and, while going through these pages, I just felt less alone with my Wegener condition and felt like joining your team!
My name is Sophie. I live in Geneva, Switzerland, with my boyfriend and my little black and white cat. My mother language is French, so please excuse my English mistakes! I am 35 years old. My job is to be a patent attorney (I am drafting patents to protect the inventions of one large company in Switzerland).
I have been living with Wegener granulomatosis since many years but have been diagnosed just a little bit more than one year ago. My symptoms are focused on nose, vocal chords, joints and skin. I've gone a long way since this diagnostic and I really feel like starting a new life now! The days of "heavy" illness however still look not to be so far away and the treatment is still ongoing (with its nice side effects...), but my main message would be a very positive one: We have a chance get much better with the right medication and getting the diagnostic is just to be considered as a promise to get better soon!
I am looking forward to reading your messages and sharing some experience with you!
Sophie
A very nice day to all of you!
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