User Tag List

Likes Likes:  0
Page 1 of 2 12 LastLast
Results 1 to 10 of 16

Thread: KathyB Update

  1. #1
    Join Date
    Nov 2011
    Location
    Natural Bridge Station, VA; Grandy, NC (OBX); formerly Fredericksburg, VA
    Posts
    367
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default KathyB Update

    Hi all -- I've been in/out of a number of forums and Facebook pages and continue to enjoy the commonalities and information we all share. I've ducked away a few times, but the last time was focusing on family and relocating back to Virginia. Today I was reading some of our older posts (back in 2012 & 2013) and realized just how much I've grown in this disease thanks to folks like you. Accepting WG for what is is in my life and being grateful for each new day. I finally did receive my Virginia Retirement System medical disability -- almost a year after receiving SSDI. I had to hire a lawyer and go through numerous denials, but in the end I had the support of an independent fact-finding lawyer hired by the VRS. I still feel the pangs of regret to have had to "quit" the educational community I dearly love. I've relocated back to Rockbridge County, VA where I raised my sons and lived for 13 years. It is truly my home. And we moved because my husband loved visiting here! We bought a 6-acre horse farm, remodeled the house, added onto the barn, landscaped, and are currently redesigning the 3-season porch along the back of the house. Granted, my husband has done most of the work, but I've settled into being a housewife and am really started to enjoy the quiet life. As long as I'm up to it, we also have traveled some. Most recently to the Canadian side of Niagra Falls! My kidney function is holding steady and I haven't had any WG flares. It's been over a year since my last hospitalization (cellulitis of the eye) and only had minor knee surgery to remove a medial meniscus. My lung capacity has diminished some, so I'll be seeing a pulmonary specialist soon. The chronic conditions we all face are still existent, but I'm learning to work around/tolerate them much better! Life is GOOD!!
    KB -- "The good life is inspired by love and guided by knowledge". Bertrand Russell

    Dx in September, 2011. Major involvement: kidneys and lungs. Medical implications: fungal pneumonia, drug-induced hepatitis, allergy to fungal meds, ear infections, sinusitis, gall bladder removal, vitreal detachment, and eye cellulitis. Medial meniscus removal (unrelated to WG). Medications: Rtx, Pred 5.0, Lisinopril, Chlorthalidone, Levothyroxin, Omeprazole.

  2. #2
    Join Date
    Mar 2012
    Location
    Suburban Columbus, Ohio, USA
    Posts
    2,169
    Post Thanks / Like
    Mentioned
    10 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hi Kathy,

    Glad you're back and that all is well with you.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  3. #3
    Join Date
    Nov 2011
    Location
    Ohio
    Posts
    1,969
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hi Kathy , its good to see you again and especially all the great news you have. Your house sound like it is wonderful. Are you planning on getting any horses for that barn ? And congrats on finally getting your disability resolved. Keep in touch !
    Life isn't about how you survive the storm, but how to dance in the rain !

  4. #4
    Join Date
    Dec 2010
    Location
    Melbourne, Australia
    Posts
    2,709
    Post Thanks / Like
    Mentioned
    7 Post(s)
    Tagged
    0 Thread(s)

    Default

    Most of that is an awesome report Kathy. It's good to hear from you again.

    I'm glad the retirement plan is working and you have settled into a new way of enjoying life.

    I don't like the lung part - fingers crossed that things will come good in that area as well.
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

  5. #5
    Join Date
    Oct 2010
    Location
    Ohio
    Posts
    818
    Post Thanks / Like
    Mentioned
    2 Post(s)
    Tagged
    0 Thread(s)

    Default

    Kathy,
    It is so great to hear that things are really going good for you and your family. This is very inspiring to me and I'm sure to a lot of others here on the forum. Keep an eye on the lungs and enjoy your new life, thanks for sharing!
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


  6. #6
    Join Date
    Nov 2011
    Location
    Natural Bridge Station, VA; Grandy, NC (OBX); formerly Fredericksburg, VA
    Posts
    367
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hi Debra! I can add a good report from the eye doctor today, too! The house and farm are just perfect for us! We are hoping to lease the land/barn/pastures to someone in the area. We are just outside Lexington, VA where the Virginia Horse Center is located, so it's a prime location for horses. We'll be ready this Spring and see how it goes.
    KB -- "The good life is inspired by love and guided by knowledge". Bertrand Russell

    Dx in September, 2011. Major involvement: kidneys and lungs. Medical implications: fungal pneumonia, drug-induced hepatitis, allergy to fungal meds, ear infections, sinusitis, gall bladder removal, vitreal detachment, and eye cellulitis. Medial meniscus removal (unrelated to WG). Medications: Rtx, Pred 5.0, Lisinopril, Chlorthalidone, Levothyroxin, Omeprazole.

  7. #7
    Join Date
    Nov 2011
    Location
    Natural Bridge Station, VA; Grandy, NC (OBX); formerly Fredericksburg, VA
    Posts
    367
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    I was thinking about you, Pete, traveling back to Ohio a couple weeks ago for my 40th high school reunion (Lorain Catholic HS). Love my Ohio roots!!
    KB -- "The good life is inspired by love and guided by knowledge". Bertrand Russell

    Dx in September, 2011. Major involvement: kidneys and lungs. Medical implications: fungal pneumonia, drug-induced hepatitis, allergy to fungal meds, ear infections, sinusitis, gall bladder removal, vitreal detachment, and eye cellulitis. Medial meniscus removal (unrelated to WG). Medications: Rtx, Pred 5.0, Lisinopril, Chlorthalidone, Levothyroxin, Omeprazole.

  8. #8
    Join Date
    Nov 2011
    Location
    Ohio
    Posts
    1,969
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    Kathy,keep the good news coming. Thata a good ides about leasing the land and barn,give you some extra income. Next time you are up this way let me know. Take care and don't be a stranger.
    Life isn't about how you survive the storm, but how to dance in the rain !

  9. #9
    Join Date
    Nov 2011
    Location
    Ohio
    Posts
    1,969
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    Kathy, I was just thinking..we are the same age, I graduated in "74". We didn't have a reunion,if we did I didn't know about it, but it seems horrible when you say 40 years ago
    Life isn't about how you survive the storm, but how to dance in the rain !

  10. #10
    Join Date
    Oct 2011
    Location
    near Phx, AZ
    Posts
    1,767
    Post Thanks / Like
    Mentioned
    3 Post(s)
    Tagged
    0 Thread(s)

    Default

    Wellll, try 50 years ago...got my 50th coming up in '16! Who did that? How did it happen? When did it happen? Coffeeeeeeeeeeeeee!
    Knowing how to think empowers you far beyond those who only know what to think. -NdT


Page 1 of 2 12 LastLast

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •