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Thread: God bless us every one

  1. #1
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    Default God bless us every one

    Just had a rough weekend. Looking back and hoping I'll keep feeling ok, it really strikes me how much this disease messes with your mind.
    When I feel ok it's all clear how you need to be strong an positive. When I don't feel ok I cannot see how it would be possible to be strong or positive. I think there is some chemical component - at least with me - that alters the way my mind works during those low times.


    Sent from my iPhone while driving on the freeway, eating salt, and drinking a 78oz soda.

  2. #2
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    Well I can't help your mind but I can send you a big hug & best wishes for a good week ahead / forget the rough weekend . Look ahead . It's clear & open for us all xx


    Sent from my iPad using Tapatalk

  3. #3
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    Greenjeep,I hope things start getting better for you.Try not to eat too much salt, lay off sodas and don't text and drive ! Like Jayne said forget the weekend and think postive for a great week.
    Life isn't about how you survive the storm, but how to dance in the rain !

  4. #4
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    Thanks all for your replies. I am feeling better.
    I am also trying to taper from 10mg to 5mg pred. I'm blaming this for my mental inadequacies this weekend. Either that or I'm going nuts.


    Sent from my iPhone while driving on the freeway, eating salt, and drinking a 78oz soda.

  5. #5
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    greenjeep,that's the problem. I think you are trying to taper TOO fast. Maybe you should go back to 10 for a couple days and try 1mg. at time for a couple weeks. Good luck.
    Life isn't about how you survive the storm, but how to dance in the rain !

  6. #6
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    Debra, do you have 1mg tablets? The smallest I have ever had is 5mg


    Sent from my iPhone while driving on the freeway, eating salt, and drinking a 78oz soda.

  7. #7
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    Pred comes in 1, 2.5, 5, 10, and 20 mg tabs (maybe bigger as well).
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  8. #8
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    U need to taper slower , I dropped by 2-5 for 2 weeks each reduction
    You can ask your doctor to prescribe 1 , 2-5 to do it with
    I was in bits doing a 5 mg drop till this wonderful place advised what to do x


    Sent from my iPad using Tapatalk

  9. #9
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    I drop 1mg every 4-6 weeks. From 15 to 5. I had no problems with the tapers until my recent flare up. Now I'm up to 20mg and changing everything. I've been doing this since 2011 and the longest I've gone between flare ups is this last year and that's because of brain surgery and removal of my left eye and surrounding tissue.
    Was on cytoxin and pred. Now trying pred, Imuran and then rtx. Can't take methotrexate.

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