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Thread: Just had my Immunologist appointment

  1. #1
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    Default Just had my Immunologist appointment

    Hi hi...
    Just had my quarterly Immunologist appointment. The results:

    • BP is actually LOW for the first time in my life (104/80).
    • Creatinine is 116 which is normal for me
    • Other bloods are in normal range....for me
    • I'm being booked in for a lung function test


    I explained how I can't get a lungfull of air when I exercise or walk up several flights of stairs. This isn't normal 'running out of breath', it's something else. It's like one of my lungs is taken away and I have to try and survive on one. It's quite scary actually when it gets severe. I'm calling to book the test tomorrow. They should be able to fit me in in about two or three weeks.

    I'm staggered about my BP being low. I reckon his machine was broken I have my own so I'm going to keep an eye on it myself. If it continues to be low then he's going to adjust my BP meds a bit.

    My ANCA level wasn't in. it takes about a week and I only got my bloods done on Monday. What can I say? I'm disorganised

    Other than that, I'm fit and healthy and will live until I'm 100 at least. I hope I do. Maybe that'll give me enough time to do all the things I want to do!
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    Diagnosed March 2003.
    Currently but not permanetly residing in Canberra, Australia.

  2. #2
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    The whole lung thing... that's what it felt like when my trachea started closing up. Have you had any sort of stenosis problems before?

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    Nope - no stenosis issues previously. Interesting point though. Might discuss this with the doc. He's going to call next week with my ANCA results.
    Forum Administrator
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    Currently but not permanetly residing in Canberra, Australia.

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    Default Ah-HAH!!!

    I just realised why my BP was so low. The doc tested my BP on my left arm. For some reason, that has always been dodgy when it comes to getting Blood Pressure checked or getting blood tests.

    I tested myself with the kit I have at home last night and it's back to a more respectable 154/81. Heh Now I feel better!
    Forum Administrator
    Diagnosed March 2003.
    Currently but not permanetly residing in Canberra, Australia.

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    whoa 154...is that normal for U! seems somewhat high is that due to your meds?

    122/78 for me hopefully it does not rise!

    by the way! do they use a big cuff when checking your BP...i know the small cuff gives me a higher reading!!!

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    Yeah it's about normal. My aim is 140/70. Despite my BP meds it remains a tad high though. I must admit that I need to look after myself more and get more exercise. I need to stay sharp these days with working and running a business at the same time
    Forum Administrator
    Diagnosed March 2003.
    Currently but not permanetly residing in Canberra, Australia.

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    you're right Andrew...

    Once you get to your goal and off your meds...and sometime in 5 years when my wife and I visit Australia, we will sit down and drink plenty of cold Fosters to raise our BP to 200 and praise the lord....whhooohoooo!

    That's is living in the NOW!

  8. #8
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    Mate, I'll start chilling the beer tonight :-)
    Forum Administrator
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    Currently but not permanetly residing in Canberra, Australia.

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    When I first went for lung tests for my breathing problems, I was asked if I had problems breathing when I took a breath in or when I released the breath. My problem was taking the breath in, which was their first indication of stenosis and after further testing my actual lungs are okay, it was the upper airway that was the problem.

  10. #10
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    Hmmm..thanks for the info. From what I'm reading, it could indeed be the case. My test is in a couple of weeks with results a few days after that. At least then I'll have somethnig conclusive (hopefully!).
    Forum Administrator
    Diagnosed March 2003.
    Currently but not permanetly residing in Canberra, Australia.

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