Bleeding from nose, especially during nasal rinses, can be one of the residual effects of Weg damage even when the labs and other indicators suggest you are basically in drug induced remission. This was a hard concept for me to get my head around too but what they mean I think is the Wegs is mostly under control so you don't need any different or additional treatment. If things are NOT getting worse, then you must be getting better. Most of us probably have some residual effects from damage caused by the Wegs. And these symptoms can wax and wane for various reasons. Infections, illness, and stress tend to cause them to worsen. Lots of nasal rinsing and keeping adequate humidity can help reduce nasal bleeding.
The lucky ones who seem to recover 100% from their Weg symptoms aren't as likely to feel the need to use this forum as the rest of us. Fatigue and mild pain are also very common residual effects from Weg damage, especially if kidneys, lungs, and sinuses were also affected. Most people get substantial improvement from treatment for Wegs but that does not mean a 100% recovery to a state of health pre-Wegs and the recovery period can take several months or longer.
How long since your diagnosis and start of treatment? How long since your doctors said you were in remission? Some of our meds we need to take can also cause aches and pains and fatigue and other symptoms too.
Knowledge is power! Wisdom is using it to make good decisions!
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