So close for dialysis (update on gilders)

[gilders]

Thanks for the concerns about my illness, which I'm 99% is norovirus as it's quite common at the moment. I'm not really THAT unwell. Stomach/flu virus is nothing compared to what most of us have to go through often with this (Wegener's) illness.
I'm sure it would have been over and done with within a couple of days, but being immunosuppressed drags things on.

[JeanMarie]

I'm going to stick my nose in here. See your doctor. With damaged kidneys you can easily dehydrate & end up with more damage.

[gilders]

Jean, thank you. I've made sure throughout that I've sipped plenty of water, even when I couldn't face food.
Yesterday and today I've managed to eat a little more, so I must be turning the corner now. I've been immunosuppressed for about 16 of the last 19 years, so I'm kind of used to illnesses sticking in my system longer than the average person. I try to avoid the Dr's as much as possible so that when I do visit them they take me seriously, rather than them thinking "here he is again with a minor illness".

[Wegetarian]

Glad to hear you are feeling a bit better. Promise us you'll at least see a doc if it gets any worse

[kmac14]

Hi Gilders, hope things are OK today with you and that Norovirus has shifted. I am a UK Wegeners and I noticed that they did mention. Dr. Jayne earlier in this thread. He is the uk and really a world specialist in wegeners and vasculitis. He is at Addenbrookes so don't know if your trust would let you go down there but do ask about him because he is the top fella. Very nice guy and says it like it is. It doesn't matter if you annoy the docs. I was like that - not bother them again. Well bother them because you are not run of the mill patient and you know your body. I got a norovirus incident and then my magnesium declined so badly that I could not shift it. I ended up a month later dehydrated v bad and that damaged my kidney. GPs would not listen and would not listen and that led to a decline. If you get no luck with the gps then go direct to your unit and see them. Don't hang about for even more than a week. It is a big deal not to get dehydrated and not to just leave it to hopefully lift on its own.

Also I think that a protein heavy diet of red meat and such like is hefty on the kidneys so perhaps check out what kind of a diet is best for prolonging the kidneys and keeping damage to a minimum. I'd say not protein rich. Lots of fluids and no holding it in. When you need to go, GO! Also, the renal patients support group on FB is vg and loads of great advice. Support for all levels of renal issues.