I agree that it sounds like a good idea to be on the lookout for kidney issues for wegs who are in remission, its so easy to not notice anything even though there would be a problem with the kidneys. I didn't experience any symptoms, and I guess I was just lucky that I got my blood and urine tested this summer as it apperars the symptom I had wasn't even weg's related and still I was hospitalised a week after the results.
I posted a link to an article where a doc recommended wegs patients to use these dip sticks to measure their urine. I did ask a rheumy and my neph about it, but they weren't convinced its a great idea since those tests aren't too reliable. For me I guess they will do regular urine tests now, and besides with blood and protein in my urine those sticks would be positive for me. But I guess for wegs whose kidneys are working fine it might be good to check monthly and then ask for lab tests if the sticks show positive results.
Originally Posted by
mrtmeo
How many months were u on the cytoxan?
I still am, guess its going to be my fifth infusion next week. They were talking about 6-10 infusions when I was hospitalized, but the latest I heard it would be 6-8 and then a switch to Aza.
How come your mom has such low pred dose? 8mg sounds very low. If she was DX'd in June I take it she has been on pred for less than 5 months.. When I relapsed in July I first got 1g IV's for three days and 80mg pred, which was slowly tapered so that I'm now on 30mg. Guess I will be on 10mg in december, but they wrote that they are using a faster tapering as I've responded well to the treatments, so just curious why your mom seems to be tapered fast even though it didn't sound like the other meds were helping her that much. Last year I was dx'd in August and I think I was still taking 10mg in May even though I felt great. Great if she doesn't need to take much, but just wondering as it sounds like a very low dose.
Diagnosed 08/2013, Relapse 07/2014, Relapse 5/2017 (although early signs of it from 12/2016)
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