Anyone on cellcept with an infection?

[Rose]

Yes, Kidney involvement was diagnosed by rapidly deteriorating function and kidney biopsy. I commenced cyclophosphamide IV x 6 months. Also had Solumedrol x 3 days before the cyclophosphamide. At the end of the 6 months my function was around 40GFR. It gradually improved over the next year and has remained fairly stable at around 58 GFR for the past 5 years. I have been on Mofetil for 6 years so yes, it has kept me in remission. I commented on your other post. I really dont understand why they have not tried this protocol with your mum especially since she has not responded to the Rituximab. I was told about how toxic cyclophosphamide was but it was explained to me that to save my kidneys they had no option. I dont think Cellcept will get her into remission with kidney involvement. It can maintain remission but you need the big guns to get her there.

Rose