Anyone on cellcept with an infection?

[Rose]

Hi Rose,
I think the mofetil is working because I am not finding any blood in her urine.
Did you have a problem with constipation taking cellcept?

NO. I think most people suffer from the opposite whilst on cellcept. I did google to see if constipation could be a side effect and it seems it can be though not as common as diarrhoea.

I hope the cellcept is indeed working for your mother. When are her next labs?

Rose

[mrtmeo]

NO. I think most people suffer from the opposite whilst on cellcept. I did google to see if constipation could be a side effect and it seems it can be though not as common as diarrhoea.

I hope the cellcept is indeed working for your mother. When are her next labs?

Rose

Her next labs are Nov 11th.

[mrtmeo]

She did have some kind of stomach bug 3 days ago that caused her to throw up and go number 2 many times, but it stopped after 5 hrs.
It happened 6 hrs after taking the mofetil, so I don't think it was from that.
The next day she was fine but didn't go number 2.
The 3rd day, she ate less and had an upset stomach at night before the mofetil and still didn't go number 2.
Today, she is still constipated with less appetite, but I had dropped her mofetil dose the past 2 nights.

[grandmaT]

I just began Cellcept 500 mg 2 x day. I also had 6 X 1 monthly IV cyclophosphamide this year beginning Feb. Current issues are recurrent bladder infections. Continued antibiotic therapy of various kinds. Within 3 days of ended dosage, bladder infections come back. Had MG since 2010 began in sinus. Have kidney involvement of a WG mass. Sorry can't help you right now, but will follow posts

[mrtmeo]

I just began Cellcept 500 mg 2 x day. I also had 6 X 1 monthly IV cyclophosphamide this year beginning Feb. Current issues are recurrent bladder infections. Continued antibiotic therapy of various kinds. Within 3 days of ended dosage, bladder infections come back. Had MG since 2010 began in sinus. Have kidney involvement of a WG mass. Sorry can't help you right now, but will follow posts

Hi GrandmaT,
It sounds like you have had a rough time like many of us.
What is MG?
Have u tried cranberry extract and probiotics or yogurt and kefir?
My grandma had bladder surgery and would always get several bladder infections requiring iv antibiotics, but after using the cranberry extract, she never got another infection.

[grandmaT]

Hi GrandmaT,
It sounds like you have had a rough time like many of us.
What is MG?
Have u tried cranberry extract and probiotics or yogurt and kefir?
My grandma had bladder surgery and would always get several bladder infections requiring iv antibiotics, but after using the cranberry extract, she never got another infection.

MG typo. I meant WG for Wegener's. Will try the extract. Thanks

[mrtmeo]

MG typo. I meant WG for Wegener's. Will try the extract. Thanks

How are you doing on the cellcept and how long have you been on it?

[mrtmeo]

Well, It took about the same time around 3 weeks for my mom to get sick on the mofetil like she did on the imuran.
I don't understand why these immune suppressants cause her the nausea and diarrhea so badly.
I don't what else she can do.

[mrtmeo]

I decided to ask her dr if she could get mofetil or imuran in an injectable form.
Will find out next week.

[mrtmeo]

Dr said that injectable Mofetil or Imuran requires an IV.
I found out that is an Enteric Coated Mycophenolate Sodium which is much more tolerable for those with GI issues.
I asked her Dr if she can try that one instead.
Here is a study showing that it was more tolerable.
Enteric-coated mycophenolate sodium reduces gastrointestinal sympto... - PubMed - NCBI

Also, I think the mofetil was working and want to keep using it if possible versus another round of Rituxan.