Just Another Day

[PJ2010]

Hi everyone,

Thought I might share my new adventure with you all.

As you all probably know every day with this illness is a struggle. Feeling so tired, the sore eyes, trouble hearing, continually cleaning out your nose, the cough and more.

I've been feeling so unwell and I've been extra alert thinking I may be having a relapse. A number of months ago I did one of those tests to check for blood in my stools. You know the one.

Well, after 3 months of misplaced referrals and the typical crap associated with the medical system I finally had my colonoscopy only to find out I now have bowel cancer.

When the doctor told me I was fine because inside I was thinking at least cancer is common and mostly understood and likely I won't go through the trauma and frustration associated with having a rare disease.

Compared to WG this will be a walk in the park (I hope). 😥

[mrtmeo]

Do u keep your vitamin D levels into the optimum range of 60-80 ng/mL?

[Pete]

Hoping they caught it early and that treatment is successful.

[PJ2010]

No idea re vitamin D.

[mrtmeo]

No idea re vitamin D.

Just ask your dr to do a 25 hydroxy D test to find your levels.
It can protect you from the cancer treatments.
It is our immune system modulating hormone.

[PJ2010]

Ok. Thanks for that. I will do that.

[mrtmeo]

Ok. Thanks for that. I will do that.

If you want to learn more about vitamin D, here are some orgs
Vitamin D | Vitamin D Council | Providing information on vitamin D
GrassrootsHealth | Vitamin D Action - GrassrootsHealth | Vitamin D Action

[mishb]

PJ you were up very early this morning

Thank goodness our Government makes us have those tests and thankfully/hopefully they have got to it early

I know exactly what you mean about being fine with the diagnosis - I was the same when they told me that I had lymphoma. At least they know how the treat it.

I guess you will have a few treatment options ahead of you to think about - best of wishes to you and your 'new adventure'

[Jaha]

I'm sorry that you now have to go thru this new bunch of tx. I hope that all goes well for you. I guess you are correct in saying that at least they will know how to treat this. It is really crazy that we at times would rather deal with the C word than all the unknown of those of us whom are not in remission and flaring every time we turn around. Wishing you all the best!

[PJ2010]

Thank you all so much. Yes Michelle, I'm always up throughout the nights. A hangover from Prednisolone unfortunately. I really don't mind actually because I've discovered a quiet and peaceful time when I can reflect and plan with no interruptions.

The one thing I have concerns about is I'm hoping the WG doesn't decide to flare whilst my body is dealing with this
'new adventure' as it could create interesting scenarios!!!

Michelle, I didn't know you have lymphoma. Has the WG interfered or caused any problems in your treatments?