I love our rheumatologist and his team, no question. But our daughter has significantly increased joint pain, traveling joint swelling now, increased chunks out of nose, granulomous activity (confirmed with biopsies) on elbows, random sores on legs and face, increased lethargy, very high PR3 and high ANCA, blood (moderate) in urine for first time, and ESR + WBC + HBC all still within normal but heading in the wrong directions. And...next rheumy appt and labs set for January. To worried parents that seems like forever. Calls and email got us the basic reply that "we see no reason to be concerned." Again, as a worried parent, concern is like a hobby. Time for a second opinion? She's 16 now, and we are trying to avoid kidney involvement (duh.)
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