Originally Posted by
newbie
Thank you, everyone!
They've done urine and blood several times. I have tried making sense of it, but it is difficult. My sed rate was only 17 and my most recent urine seemed better than the previous two. the docs said no sign of kidney involvement. The whole thing is overwhelming and confusing. Especially the solitary mass....I can only find anecdotal evidence of that with Wegener's. It seems lung involvement presents as multiple nodules not solitary, large masses.
I am seeing another rheumy tomorrow morning for second opinion and I am still waiting to see a pulmonologist.
I am not in complete denial, I know something is wrong. Some days I can't even get out of bed. Two days ago, out of the blue, my right shoulder was in such pain, I couldn't lift my arm. Today, it's my knee. And, my coworker asked me what was wrong with my hand today, I looked down and my left hand was white and bluish(it was cold in the office)...again...wtf??? I feel like a stranger in my own body.
I have these:
Antimyeloperoxidase (MPO) Abs
<9.0 U/mL 0.0-9.0 N
Antiproteinase 3
(PR-3) Abs
94.4 H U/mL 0.0-3.5 N
Cytoplasmic (C-ANCA)
1:80 H titer Neg:<1:20 N
Perinuclear (P-ANCA)
<1:20 titer Neg:<1:20 N
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