Bowel obstructions or Perforations

[dodi.houghton]

I couldn't even imagine the pain. It breaks my heart to know that my daughter and yourself had to go thrown that

[dodi.houghton]

A week after???? Why so long

[mrtmeo]

Hi there Dodi. im one of those occasional posters but I stay up on them when I can.

A couple years ago I had a bowel obstruction and I was in the hospital 14 days. I went in after suffering all night and then all day and went in in the evening. I was get vomiting and the pain was excruciating. I was throwing up things that I was sure I didn't eat and told the nurse that each time I vomited I felt better for a short. To be graphic, I told the nurse that what was coming up looked like feces! She assured me it was because I was backed up and it was trapped on the wrong side of the obstruction. Its a very serious condition and needs to be treated. They scheduled me for surgery a wee after I was admitted but began to pass a little gas just a couple hours before I was scheduled. I have had colon cancer, hence a resection and with my COPD and other health issues, they really didn't want to do surgery for fear of introducing bacteria to my medically depressed immune system. Im told that once you have an obstruction, there is a greater chance for a second at some point. I had scar tissue from my cancer and they felt that was partially causing an obstruction and feared cutting more colon would only bring on more attacks. That is my experience with a bowel obstruction.

Ouch Tom!
What a horrible thing to go thru.
My mom has COPD too.

[Jaha]

Dodi, I am so very sorry that you lost your beautiful young daughter to this horrible disease. Thank you for sharing her story and bringing awareness to others about wegeners. These other conditions or complications are so many times overlooked and not linked to wgs. It is so hard to explain to new docs about what can be related to the disease and they seem to not know the key tests to order. Awareness is the best thing that we can do. Wishing you all the best for some peace.

[mishb]

I'm so sorry Dodi, to hear of your daughters passing.
After Phil passed away, I have only slowly been getting back to other posts/threads. I have quite a few pages to catch up on.

Alysia, this is the post and you and I have missed while we haven't been around much.

[dodi.houghton]

Thank you so much. It's been hell trying to figure this all out. I had a meeting on Monday with the hospital. It's actually the second meeting, and still no one has taken any responsibility in their actions of not monitoring her signs that she was becoming septic

[dodi.houghton]

Unfortunately she had some of the top doctors who specialized in vasculitis. I can't comprehend how the nurses would not think throwing up blood isn't a good enough sign to call a doctor. And that was just one sign of something going very wrong

[gilders]

So sorry to hear about your daughter. I've been going through a relapse for the last 24 months and have been on and off this forum and missed the news of your daughter.
I was 17 when diagnosed and suffered from septicemia whilst in hospital. Luckily I had a good Dr and the NHS was in a much healthier state back then (19 years ago).

[dodi.houghton]

I don't understand because she had amazing doctors sorme of the best. She was to be released in a few days and I feel that they were more focused on that than the symptoms she was having. I totally understand this disease is so difficult but when she is saying and i quote " it feels like I am being F@!.% ripped apart inside and feel like I am on fire there's a problem

[mishb]

I have just noticed that you are in Canada, as Phil also was

Phil was always adamant that Canada has the best WG specialists, but now I'm starting to wonder.

I know that no-one should ever have to go through the pain that you daughter did, but especially not a young lady of her age.

I hope you get some answers soon.