Originally Posted by
Velma
I agree that the doctors don't tell you everything and I think sometimes they are in it for the money whether it is for their own practice or a hospital they work. This is something that is new for me and I guess the scarring is not really a wg issue but just as bad as if it was a flare. At least with a flare the meds can be adjusted or changed but with this there are no answers it seems. I am praying for a miracle. I have messaged my WG doc and asked for him to refer me to a different lung doctor and I will let you all know how things are going as I find out more information. Lord knows I have tried herbal meds, changing diet, exercising more, anything and everything to reduce inflammation and slow the scarring process. Nothing seems to help make any difference. Just a loss for what to do next. The hardest part is that this has effected me personally but my 15 year old and 23 year old have had to adjust their lives for me because of my health issues. That is the worst part. Definitely a cruel disease. More news later as I get more information. Thanks everyone!
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