Originally Posted by
kaysee
I was just diagnosed in April 2014. I was put on prednisone only until the insurance approved the rituxan infusions. I had my first rituxan treatments through June/July. Four treatments - one each weeks for 4 weeks. My kidney function went from 25% to 50% after the treatments and most of the blood test results returned to normal. We started to decrease the prednisone by 5 g every 7-10 days and mid August I was off prednisone for two weeks. I imediately had a flare up of the WG not being on any maintenance drug. I was told that rituxan can be adinistered only at 4 month intervals, so I am scheduled for those to start again Sept. 29. In the meantime I am back on prednisone (30 g) and was hospitalized for 4 days having pulse steroid infusions. Those are very high doses of steroid infused once a day. I had 3 days at 125 mg with not change to my kidney function. I then had 500 mg for three days and the kidney function started to improve. We are trying to reach remission with the rituxan so that I can get off the prednisone. I have had no other drugs for the WG to date. I have had to start Lisinopril for high blood pressure and a water pill which is not helping much.
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