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Thread: Expanding our coverage

  1. #11
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    I have to agree with everyone also,my answer would be no. Like Geoff put it we are a special bunch !!!
    Life isn't about how you survive the storm, but how to dance in the rain !

  2. #12
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    Special people, Special disease, Special Forum with a Special Administrator
    Dale
    Dx Aug, 2009 Remission June 2010 until 8/1/2014

  3. #13
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    Agree with that Renidrag

    Rif

  4. #14
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    I think you have your answer, sir.... :-)

  5. #15
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    I have to agree with the majority on this Andrew. This site is very important to WG sufferers, we need it, and we need each other. It is a very nice idea to expand the site but we would be swamped with to much information that is not suitable for our wee group.
    Mike
    If you can't be positive be optomistic.

  6. #16
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    Hi Andrew,
    I was the one who asked about adding MPA because it is very similar to wegener's, but I agree with others on adding the other AI diseases.
    Adding the others opens a big can of worms due to the immense differences.
    However, MPA is extremely similar and treated with the same meds as GPA.
    It would only need a link in the forums listed as an MPA section and not the whole forum.

  7. #17
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    I think we should just keep life simple. The forum is working so well for us now and has been a great answer for many of us for years. I think we should leave it alone. I hate to mess with something that's working....

  8. #18
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    I think this is the best forum worldwide on Wegs/GPA.
    Very, very usefull for us, with our funny rare disease.
    I hope it stays the way it is...
    Living with WG/GPA since june 2010...

  9. #19
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    My opinion is that if the home page reflected links to DIFFERENT forums for different diseases, that could be cool. For example, if someone typed www.autoimmunediseaseforum.com, that would open up the landing/main home page giving folks the links to the forum that is for their disease. (btw Andrew, that url looks like it is available)

    This forum would remain unchanged, just new ones, for other auto-immune diseases, would be added to Andrew's servers.

    I don't believe that mixing in other diseases into this forum would be a good idea.

    The good thing that COULD result from this is to have all auto-immune disease sufferers on one site, and just MAYBE that would draw some attention to researchers, advocacy groups, etc.
    MikeG-2012

    "You never know how strong you are until being strong is the only choice you have"


  10. #20
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    Good ideas and point of view, Mike. I know we have had some people with MPA and other things similar to WG on here, and that is fine, we aren't going to turn them away, and they have something to contribute. I wouldn't want to encourage it too much, though, as it could be confusing for those new at Wegs and make the threads harder to follow. I think having links or sub-forums for other kinds of vasculitis or AI diseases is a good idea, though. Especially if the people with those diseases have nothing as good as our forum to go to.
    Anne, dx'ed April 2011

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