lado123

[lado123]

hello- I'm new to the group - diagnosed beginning of Oct 09.

really don't know much at all about WG, hadn't even heard of it a month ago.

It seems to have been building up over the last year or so with swollen joints and pain and difficulty walking etc.

I would be grateful for any info you consider useful - they have me on Prednisolone and Methatrexate at the moment and I am hoping it will be ok.

best wishes

[crackers]

hi lado and sadly welcome.without knowing what the docs have told you and more about your symptoms,the best advice would be to read the other posts on the forum.you will learn alot from them.this disease affects everyone differently but you should find something you can relate to.please come back soon.
john.

[Doug]

Sorry to welcome you to this forum, yet glad you came! First up, please spend some time on the forum reading. It should give you a sense of the types of questions we ask that help us pinpoint what you need to know in terms of treatments, specialists, etc. While we don't give medical advise, we will tell you our personal experiences as people with WG or family of people with WG.

This link is a great starting point for information from the general to the specific. Their FAQ section for new patients is especially useful. I wish I'd had this information when I first was diagnosed.

Front Page | Vasculitis Foundation

[Jack]

And if you just want to say that it is crap and why has it happened to you, that's OK too. We've all been there.

[lado123]

Thanks so much for a quick response - I feel more a part of things now I'm included.


I see my specialist this thursday for the first time since coming out of hospital so depending on how that goes I should be a bit more informed and can hopefully share my news.

regards

hello- I'm new to the group - diagnosed beginning of Oct 09.

really don't know much at all about WG, hadn't even heard of it a month ago.

It seems to have been building up over the last year or so with swollen joints and pain and difficulty walking etc.

I would be grateful for any info you consider useful - they have me on Prednisolone and Methatrexate at the moment and I am hoping it will be ok.

best wishes

[crackers]

you're part of the family now.you can ask anything,say anything or just have a rant if that's what you need.please share your news on thursday.
john.

[Sangye]

Hi Lado, Ditto to what everyone has said. I'm glad you found the group so early after diagnosis! You don't have to worry about being alone with Wegs. This is a great group, and you're welcome to share or ask for anything you need.

[RCOSSIO]

Welcome and all questions are more than welcomed...question such as treatment, length of time, medical care and if Manchester United will win the cup...or even question such as...Do the Argentinians really want the Falkland Island...in fact all question are more than welcomed here!

[onatreetop]

Hello. You aren't alone. I hadn't heard of WG until the end for June 09. I was in shock the first two monthes. I expected to have all my mothers problems but this one is not one of her many. After the first few months I decided I love to live and be around other people that know how to live! I had never been really shy but now.................I take every moment for what its worth. With my family, friends and even people Ive never met before. Welcome, everyone here has made me feel very welcome and have given me a wealth of knowledge. And I havent been here that long. From what I have read anything almost flies here. And any question can be found an answer.

[jola57]

Hi and welcome to the group. All the answers to many of your questions are in the posts. Browse thru them and if you have any more questions fire away. We all new nothing about this disease before getting it. Within this family we each have a wealth of information because of this forum.