Thank you to Twice and Suzie for sharing your experience! Mum is getting better everyday. I had real worries about the IV chemo - cyclo, but she wasn't sick or had any real bad side affects. Her appetite is improving, the steroids make her feel strong and give her loads of energy. She's lost an awful lot of weight, at least 12 kg, so putting some on, won't do her any harm.

They are giving her the chemo pills on Monday, she'll be having it via IV every three weeks. She still can't breathe without oxygen and still has no voice, but the voice can be looked at later. As soon as she can breathe without the oxygen, the sooner she can go home! She keeps saying that the steroids are marvellous!

At the moment, no mood swings yet, but I have warned her that it may come along!

Thank you for all your info. It's so reassuring to hear real people talk about their experiences.