Sorry to hear that Nickki
Sorry to hear that Nickki
~ Bob
Sorry to hear your Wegs is acting up again. I hope you get it back under better control and feel better soon.
Relapses during the first year or two of treatment are probably the norm but tend to be partly controlled or reduced in severity by being under treatment with meds to reduce Wegs while you usually slowly move toward remission. Once you are correctly diagnosed with Wegs it is also a lot easier for you and your doctors to recognize a flare when they occur after you finally attain a remission and to begin proper treatment in a timely manner. Some people have great difficulty attaining a state of remission and may only show a substantial or significant improvement without attaining a solid state of remission or have frequent and on going relapses.
Knowledge is power! Wisdom is using it to make good decisions!
Fits me too. I was most severe, nearly died, isolated mostly to lungs, with some other symptoms.
Yet I did very well, It was 10 years before my next flare.... Including 5 years with no medicine whatsoever!
I am so sorry for those of you who deal with the "chronic" version!! that is so so hard.
My dr said i was 2 weeks shy of kidney failure when i got my dx. In 14 years ive had had around 10 flares. Mine is chronic, smoldering. I guess we are all different.
Dr Jayne has told me that those with sinus involvement are likely to flare within 2-5 years. If you go over this time you are likely to have a long remission. If you flare within 2-4 years then you are likely to always flare within this time frame. I was flaring for god knows how many years before diagnosis. When diagnosed I was treated with MTX but it didn't bring my symptoms under control. I was then given a course of RTX which gave me remission. I then flared after 2 years so I fit into this category.
"I believe that I have seen a negative attitude kill people, but I don't think that a positive one will cure you. However, I know that it Helps". Jack
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