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Thread: Anyone using rituxin as maintenance?

  1. #11
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    Happy Halloween Richard...I guess. Sorry you've relapsed, but you know the procedure. Best to you on this round!
    Knowing how to think empowers you far beyond those who only know what to think. -NdT


  2. #12
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    I will keep you informed I believe my infusion will start October 6....
    Quote Originally Posted by Sangye View Post
    Aww Richard, I'm so sorry. You've had a really good run of it for 6 years and I'm glad for that. I hope the rtx sings the Wegs dog a lullaby that gets him back to sleep easily.

  3. #13
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    We'll today my numbers started going down in fact no more blood...insurance is wanting more lab with increased cell crept to see if I go back in remission. Weird huh! Right I am scheduled to start Oct 6.
    Quote Originally Posted by drz View Post
    It is great to have had that long remission but it also confirms the need for on going monitoring since who knows when the wicked Granny will awake again and harass one further. Best wishes for a quick return to state of remission.

    Curious as to why the need for a wait for the RTX. I would probably want to start tomorrow or some time this week, why not?

  4. #14
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    Richard that's a good thing, another set of labs will be essential. Best wishes to you and what ever tx that it will take, to make the dog sleep again.
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


  5. #15
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    No RTX treatment yet...my best guess is what I suspected if my meds were increased from 2000 to 3000mg Cellcept and a higher Pred and my numbers stabilized (chemical remission) then they want more reasons from Doc as to why a course of RTX is needed!

    Will keep you informed.

    BTW...whew is RTX EXPENSIVE, my understanding it is almost $12K per infusion. SMOKES!!!!!

  6. #16
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    It's a good thing if you can get the Wegs dog back to sleep with just a bump in Cellcept and pred.

  7. #17
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    Gosh yes Sangye

  8. #18
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    Quote Originally Posted by RCOSSIO View Post
    BTW...whew is RTX EXPENSIVE, my understanding it is almost $12K per infusion. SMOKES!!!!!
    When I got my rtx at Ohio State, they told me the list price was almost $20K. Thankfully, insurance paid all but $20.00. You're right. It isn't cheap, but it sure worked for me.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  9. #19
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    Pete that was 4 infusions...$80K total?

    Quote Originally Posted by Pete View Post
    When I got my rtx at Ohio State, they told me the list price was almost $20K. Thankfully, insurance paid all but $20.00. You're right. It isn't cheap, but it sure worked for me.

  10. #20
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    Quote Originally Posted by RCOSSIO View Post
    Pete that was 4 infusions...$80K total?
    My insurance paid for mine too ($18,600.00 each)

    So far, I've had six since November of last year and will have two more in November of this year. Someone else can do the math, because I think I'd cry if I had to do it!! (-8

    Seriously, I have a great job with great benefits and fantastic insurance. That is why I drag my sorry, sick, aching behind out of bed every morning and get to my office by 7:15 a.m.--I need the insurance and benefits.
    MikeG-2012

    "You never know how strong you are until being strong is the only choice you have"


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