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Thread: Now I'm getting angry

  1. #101
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    Your having has much luck as my son Jonathan who's got Wagner's.
    It's almost 4 yrs since he was diagnosed he was 14 at the time, but was 13 when he became ill. After months of being called a liar by ent because he had really bad earache, ( now he wears hearing aids because the Wegener's affected his hearing) he then ended up in a wheelchair because his joints were so badly swollen, thankfully a doctor sent him to see a specialist. With in minutes of seeing Jonathan he was rushed in to hospital. We was told at the time he only had hours to live.
    Thankfully he's been off his medication for 6 months and he's been told he is in remission.
    Please don't give up, you know your own body no one else does.
    Jonathan specialist told us when the Wegener's is in remission it is not attacking his body, it will only do that if he relapses.
    Good luck and keep us updated.
    Jeanette x

  2. #102
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    Quote Originally Posted by Jeanette View Post
    Your having has much luck as my son Jonathan who's got Wagner's.
    It's almost 4 yrs since he was diagnosed he was 14 at the time, but was 13 when he became ill. After months of being called a liar by ent because he had really bad earache, ( now he wears hearing aids because the Wegener's affected his hearing) he then ended up in a wheelchair because his joints were so badly swollen, thankfully a doctor sent him to see a specialist. With in minutes of seeing Jonathan he was rushed in to hospital. We was told at the time he only had hours to live.
    Thankfully he's been off his medication for 6 months and he's been told he is in remission.
    Please don't give up, you know your own body no one else does.
    Jonathan specialist told us when the Wegener's is in remission it is not attacking his body, it will only do that if he relapses.
    Good luck and keep us updated.
    Jeanette x
    Welcome to the family, Jeanette. I am sorry for the sufferings of your son and you. Being the one who takes care isnt les tough, although in another way. Thanks God that your son is now in remission. You can start a new thread under new members presentations subforum. There are more mothers of teens around so I hope you can help each other. If you want me to connect you with some mothers on facebook, please send me pm.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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