User Tag List

Likes Likes:  0
Page 7 of 11 FirstFirst ... 56789 ... LastLast
Results 61 to 70 of 102

Thread: Now I'm getting angry

  1. #61
    Join Date
    Aug 2014
    Location
    Florida
    Posts
    86
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    PJ! I was exactly the same way that you are feeling. It's like I wrote what you said! If it was me in my opinion I would try and find another Dr to start with. This WG is hard for some Dr's to understand trust me I have been there. I have a great team and the Dr I would recommend would be a IMA Dr (Internal Medicine Associate) The Dr I have is also older and my problem was that my medications needed to be changed and reevaluate. It can be that easy.

  2. #62
    Join Date
    Jul 2014
    Location
    Ballarat, Victoria, Australia
    Posts
    80
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Tuesday I have the CT scan. I've only just noticed on the referral the dr has ordered the scan because the chest X-ray revealed a shadow on the lungs. That explains the worsening cough. Could be granuloma? Might be something I might not like. Will find out soon enough.

    Have a a nice day to you all.

  3. #63
    Join Date
    Dec 2010
    Location
    Melbourne, Australia
    Posts
    2,751
    Post Thanks / Like
    Mentioned
    12 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hey PJ, how did the scan go, do you have the results yet?
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

  4. #64
    Join Date
    Jul 2014
    Location
    Ballarat, Victoria, Australia
    Posts
    80
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hi Michelle. After sweating it for almost a week I found out yesterday it's all clear. Don't know what the shadow was but nothing to worry about.
    I contacted the AMA this week and put in a complaint concerning the lack of adequate medical care I'm receiving from my specialists. I'm still waiting for their response. I'll let you know the outcome.

  5. #65
    Join Date
    Dec 2010
    Location
    Melbourne, Australia
    Posts
    2,751
    Post Thanks / Like
    Mentioned
    12 Post(s)
    Tagged
    0 Thread(s)

    Default

    This is awesome news.

    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

  6. #66
    Join Date
    Jul 2015
    Location
    Arizona
    Posts
    910
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    Quote Originally Posted by PJ2010 View Post
    I contacted the AMA this week and put in a complaint concerning the lack of adequate medical care I'm receiving from my specialists.
    Try this one:

    [email protected]

    It's an organization devoted to tracking and maintaining statistics on health care organizations rather than helping individuals solve a problem. It's worth doing for the minor effort required to lodge a complaint, just to send one email.

  7. #67
    Join Date
    Jul 2014
    Location
    Ballarat, Victoria, Australia
    Posts
    80
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Well, so far my contact with the AMA (Australian Medical Association), did not fall on deaf ears. I had contact from the medical administrator and discussed my issues involving the lack of medical attention I have been receiving.
    I attended an appointment with the specialist who checked me thoroughly and is sending me for some more extensive tests. After being treated for Wegener's since 2010, he now wants another biopsy to ensure I have this disease.
    Im OK with that, maybe then they might take me a little more seriously.
    I think the saddle nose should really answer their question and that in 2010 a biopsy was taken from a pseudo tumor behind my right eye which was growing at a very fast rate causing lose of vision.
    Stay tuned

  8. #68
    Join Date
    Jul 2014
    Location
    Ballarat, Victoria, Australia
    Posts
    80
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hello everyone. I've been gone a while. So much has happened in the last 4 or 5 months. They have now put me on imuran. 10 days into it so far. Vomitting etc. I feel worse. They say that clears.

    All I want is to be able to work 4 more years. I'll be retirement age then. I don't want this disease or the meds causing me to stop earlier.

  9. #69
    Join Date
    Mar 2012
    Location
    Suburban Columbus, Ohio, USA
    Posts
    2,371
    Post Thanks / Like
    Mentioned
    20 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hope you're right about the immuran symptoms. Then, you should be able to work until retirement. I got sick nine months after I retired...
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  10. #70
    Join Date
    May 2008
    Location
    Canberra, Australia
    Posts
    1,578
    Post Thanks / Like
    Mentioned
    35 Post(s)
    Tagged
    2 Thread(s)

    Default

    Quote Originally Posted by PJ2010 View Post
    Hello everyone. I've been gone a while. So much has happened in the last 4 or 5 months. They have now put me on imuran. 10 days into it so far. Vomitting etc. I feel worse. They say that clears.

    All I want is to be able to work 4 more years. I'll be retirement age then. I don't want this disease or the meds causing me to stop earlier.
    Good to see you back again. Unfortunate side-effect from Imuran. How long does the doc think you'll be feeling like this?
    Forum Administrator
    Diagnosed March 2003.
    Currently but not permanetly residing in Canberra, Australia.

Page 7 of 11 FirstFirst ... 56789 ... LastLast

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •