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Thread: pberggren memorial thread

  1. #921
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    Default Re: pberggren memorial thread

    Quote Originally Posted by Alysia View Post
    it is. cute and warm house. kind of house that once you get inside you feel at home.
    Will you ever see this post? This love story, this wonderful love story, is what I am living on these days. Is there a way to see the pictures? Is it my computer? All I get is a little black box with an X in it. But if I never see the pictures, thank you for sharing all that you experienced together. This is the kind of love that goes on, truly. God bless.

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  3. #922
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    Default Re: pberggren memorial thread

    Quote Originally Posted by hellojulie View Post
    Will you ever see this post? This love story, this wonderful love story, is what I am living on these days. Is there a way to see the pictures? Is it my computer? All I get is a little black box with an X in it. But if I never see the pictures, thank you for sharing all that you experienced together. This is the kind of love that goes on, truly. God bless.
    Thank you so much Jullie. You are very kind. God bless you.
    The beginning of our love story is on another thread, I hope the link works, here:

    www.wegeners-granulomatosis.com/forum/threads/889-Update-on-pberggren/page254?highlight=Update+pberggren

    I will send you a friend suggestion. If you will confirm it, you will be able to watch the pictures: go to my profile and watch the albums.

    As for the other pictures on the thread itself, I used the wrong technique when I posted them so they didnt last.
    Last edited by Alysia; 12-25-2017 at 04:07 AM.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  4. #923
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    Default Re: pberggren memorial thread

    Once on the skype I told my sweet Phil that if I could have choose between having wg and finding my sweetie or not having wg and not finding my sweetie, I would choose wg, again and again and again. It made him tears when I said so. I still do. As much as wg is a nasty disease, as much as I madly miss my sweetie, the body is temporary. The soul is eternal. I have found my beautiful soul mate, and one day he will come to pick me up, to spend eternity with him in the presence of Our Lord. It will be heaven.

    ~~~

    "Glory to God in the highest: and on earth peace to men of good will". (Luke 2:14)


    Merry Christmas in heaven, sweetie. I know that you enjoy being up there, where you trully belong. I can imagine your peace and joy. Have a wonderful celebration.
    Thank you for coming to visit me when I need you the most, for watching over us, for shinning upon us with your cute melting smile, for praying for us. Thank you for being you. I love you with every beat of my heart.
    Last edited by Alysia; 12-25-2017 at 05:51 AM.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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  6. #924
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    Default Re: pberggren memorial thread

    To my sweetie....

    Today, it is 38 months since you have entered eternity, sweetie. I hold your words close to my heart, I hold our memories, our love, I hold you - inside my heart. And I know that you also hold me. I love you. Allways. & Forever.


    07/06/2014 07:53
    Phil Berggren
    Remember that all strength comes from God, not us. We have no choice when we die. This life is but a speck of dust, not even a speck of dust, a billionth of a trillionth of a speck of dust, compared to the whole universe when it comes to our lives being forever.
    Last edited by Alysia; 01-03-2018 at 05:43 AM.

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  8. #925
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    Default Re: pberggren memorial thread




    Sent from my iPhone using Tapatalk

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  10. #926
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    Default Re: pberggren memorial thread

    Sharing my beautiful Phil's story as was written by his mother on facebook in a discussion about the importance of good docs.


    Early diagnosis is vital. Our son, Phil, was born July 7, 1976. In the fall of 2002 he went to a neighbouring city, Moose Jaw, Saskatchewan to take a course in water sciences. He was totally healthy. In April of 2003 he came home by bus because as we later found out he was too ill to drive his car. We took him to the hospital in Swift Current Saskatchewan where he spent 8 days coughing up blood, although an X-ray was never done. His ears were very painful so they booked him in for tubes to be put in his ears in Saskatoon Saskatchewan. We drove up to Saskatoon the day before and stayed with friends. Our son, Phil, was laying on our friends couch and he said to his dad, "Dad, I'm dying", so we took him to emergency at St. Paul's Hospital in Saskatoon and while we were In the waiting room a young doctor, maybe an intern, heard him coughing, and had an X-ray done immediately. He had the results in 10 minutes. He came and talked to us and he said it could be TB, it could be aids, but based on Phil's lifestyle he ruled those two diseases out. He said he thought it might be a very rare disease called Wegener's Granulomatosis. He said a biopsy of Phil's lung would have to be done in order to confirm this. The ENT still wanted to proceed with the tubes in the ears as scheduled and they used tissus from his ears to test for WG. So this was on the first Monday in may of 2003. They refused to start medication until the biopsy results were back, which they expected by Wednesday. In this short time Phil had deteriorated so much. His legs were thinner than broom sticks. He told us he would die that night. My husband threatened the doctors so that they would begin the treatment. They did. Of course now we know that a big part of the early treatment was prednizone. We finally left the hospital that night totally exhausted. Back the next morning and our son's bed is empty. Frantic to nurses - where is our son? Oh, he is in the lounge watching TV. Well, that was in May of 2003. Phil had a couple of specialists in Saskatoon that we travelled to many, many times. But they really didn't have a clue about WG because Saskatchewan has a total population of 1 million. Well, God be praised, into our small city of Swift Current there came a doctor, dr Senyo Tagboto, originally from Ghana and recently from Birmingham England, where he had had over 300 WG patients. So Dr. Tagboto was a Godsend to Phil and his family. He had several remissions from the disease, including one in 2007, when he was able to travel to Fatima, Portugal for the 90th anniversary of Our Holy Mother's appearance there. Dr. T had also studied medications and he knew exactly what Phil needed and when he needed it. When the lungs got really bad, Dr. T referred Phil to a specialist in Calgary, Alberta, dr. Dave Stather. Dr. T continued as Phil's home doctor until he moved back to Ghana in 2013. In 2013 or very early in 2014, Dr. Dave was killed while on holiday in the States. So Phil lost Dr. T and Dr. Dave almost simultaneously in 2014.
    He died in Calgary Foothills Hospital on October 2, 2014.
    The doctors you have make a TREMENDOUS difference!
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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  12. #927
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    Default Re: pberggren memorial thread

    I write much less now about my grief over my sweet Phil and how much I miss him and still need him... how much I love him...


    but it is allways there, inside me.


    In time, I have learned to contain my sorrow, it's like a bag full of tears, which I handle tenderly and carefully, making sure it will not spill out... this bag of tears, when it gets opened, it hurts so bad, like literally feeling my broken heart....


    So I try to keep it close, after all, I must be able to do all my duties and I do find my consolations...


    I am also careful most of the time not to sadden others.


    So I handle it with my sweetie and My Lord.


    Some days it is harder to hold closed my bag of tears, my longing to my sweetie... especially at the beginning of July... soon it will be my sweetie's birthday and all the memories... 4 years ago this month when I held him for real for the first time......
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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  14. #928
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    Default Re: pberggren memorial thread

    I am so sorry that you have this pain, but so glad you and Phil had each other, even for such a short time. May the Lord keep your spirits together and bring comfort to you as you face this difficult time. 💗🙏🏻 💗

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  16. #929
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    Default Re: pberggren memorial thread

    Quote Originally Posted by BookNut View Post
    I am so sorry that you have this pain, but so glad you and Phil had each other, even for such a short time. May the Lord keep your spirits together and bring comfort to you as you face this difficult time.  
    Thank you from the bottom of my heart, Jacquie, I love you. The Lord holds me and lifts me up all the time, and many times he does it through wonderful friends like you. God bless you ❤
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  17. #930
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    Default Re: pberggren memorial thread

    Bat Horse has made his annual return as my avatar in honour of Phil and Barbara N's birthdays on June 7th.
    Diagnosed April 1995

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