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Thread: pberggren memorial thread

  1. #961
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    Default Re: pberggren memorial thread

    Alysia,
    I know that every day you think of Phil, but this time of year must be harder for you.
    Carry on thinking about him, but try not to get too upset. You know all Phil would want is for you to be happy and healthy.
    Hope everything went well with your WG Dr appointment and you're feeling well.
    I was back at transplant clinic today and they've moved me from fortnightly appointments to monthly, so they must be happy with my progress. I'll update my "Transplant" thread once I've received my blood test results.
    Diagnosed April 1995

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  3. #962
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    Default Re: pberggren memorial thread

    Thank you so much my friends, for your caring and kind words. You warm my heart. I love you. Thank you for being here.

    I share here things which I don't share on facebook. I don't want to make Phil's parents more sad then they already are. They are both too sick. His dad has COPD and he feels too bad.

    Most of the time I am not sad anymore, I mostly feel blessed to have my beautiful Phil, his sweet eternal love and the gift of Faith that he brought to me.

    Anne, I also have wg crushing fatigue. No idea how I did all these on Oct 2. I did got 30 minutes nap in the middle of that day. I think I was running away (almost literaly) from the sorrow and the pain until it caught me. I did felt relief after crying although it aches badly. It is better to face the sorrow then to escape it.

    Michelle is correct: I didn't post here the post that I posted on facebook because of the forum's rules. If anyone wishes to read it - please send me pm with your email address or a link to your facebook profile. It is a very long read so I guess I can't send it on the pm here.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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  5. #963
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    Default Re: pberggren memorial thread

    July 7 is my beautiful Phil's birthday. "forum time", it is here already... also "heaven time"..

    I wrote to him:

    Happy Birthday in heaven, my sweet eternal love


    During those tough times of the pandemic on earth, I feel relieved that you are safe up there with Jesus. You can breath perfectly well and enjoy the breeze of heaven, while you are watching over us and praying for us.


    I close my eyes and I see your caring sweet face, full of compasion, so tender and beautiful. You must be working day and night since the pandemic has started. You know too well how it feels when a disease hit the lungs, the torture of tough coughing and how exhausting and scary it is to be short of breath...

    So, I imagine you flying with your Batman's wings from bed to bed of covid19 patients, over all the globe, doing your best to help those in need, although you don't even know them.... like you always welcomed new members to the forum and tried your best to help them...


    May your birthday gift be that Our Lord will accept your requests to help the sick and will make miracles for them.


    Take care, sweetie, get some rest (after all, you need to rest in peace) and celebrate your birthday in a heavenly way.


    I love you, to infinity and beyond. Always and forever


    P.s. while writing the above I have chills so I know that it means that you are near me. So sweet of you. Thank you
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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  7. #964
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    Default Re: pberggren memorial thread

    Bathorse is back for his yearly visit.
    RIP Phil and Barbara N.
    Diagnosed April 1995

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  9. #965
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    Default Re: pberggren memorial thread

    Thanks for remembering about Bathorse, Gilders. We will always remember Phil and Barbara with love.

    Sent from my MotoE2(4G-LTE) using Tapatalk
    Anne, dx'ed April 2011

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  11. #966
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    Default Re: pberggren memorial thread

    Thank you so much, @gilders and Anne. It means a lot to me.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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