pberggren memorial thread

[mishb]

I can't wait to hear your updates but at the same time, I don't want to see them

My heart goes out to you and my prayers to Phil.

As I said to you privately, I just wish that there was more that I can do - from Australia

Much love to you both

[Jayne 14]

Thinking & praying for you both
Thanks for the update heartbreaking as it is
Stay strong
Xxxx


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[RudiK]

Thanks for the update Alysia, I hope and pray that Phil will get better. Good luck to both of you.

[Psyborg]

You two are in my prayers.

[drz]

Sorry to hear the distressing news. I think though it is harder on the concerned and caring family to watch helplessly than to be the patient so try take care of yourself too.

my update is based on my talks with Phil and lately with his nurse.
the night before Phil had pains in his chest at the left side. later it turned out in the cxr that the left lung collapsed too
this morning (his morning, my afternoon) my sweetie didnt message me like he does every morning, and knowing from his night (my morning) that the left lung also collapsed I was madly worried. I called the nurse and she told me that he is going today for another chest tube for the left lung. it will be chest tube number 8. he was sleeping when she talked with me and she said that he had tough night. his sats are low (he told me that they were even down to 60's) so they raised his oxygen to 85 % which is huge. before that he was on 40% which is similar to about 10, which is also very high.
I am checking if I can be back to him. I will know at the end of the week. it is so scary and heart breaking and unbearble to be away from him when he is going through all this. I want to be there and to hold him for real. I just can't stop crying
please pray for him as strong as you can. thanks for being here. love you.

[jvilner]

Hoping Phil gets better and that you take care of yourself as well!!

[chrisTIn@]

...she told me that he is going today for another chest tube for the left lung. it will be chest tube number 8...

...I am checking if I can be back to him. I will know at the end of the week...

Were they able to succesfully insert chest tube nr eight? I sure hope so, and hope the saturation will go up again, so Phil won't need all those oxygen and will be able to write a message here.
Good luck Alysia, with your attempt to fly back again, but as more people have said here already: take care of yourself too! Try to get enough rest too!

You both are in my thoughts. Many greetings from the Netherlands.

[Alysia]

thank you for your prayers and support and caring and love.
yesterday was very scary. they insert the chest tube but before, Phil felt so bad, like he is going to die he said after, that the docs saved his life. today I had short talk with him. the left lung is not up yet the docs consulted with his WG doc and they suspect that the wg is active so he will start pred and rtx and antibiotics. I hope all these can help.
please continue to pray. thanks for being with us. I love you.
p.s. I am ok. I just did my labs and they look good. I wish my love to Phil could have heal him, like his love to me is healing me.

[annekat]

Thanks, Alysia! I'm so glad, even though there are still issues, that Phil is feeling better and more like someone who is going to keep on living! You are right, he is a fighter. I'm also happy that your labs look good. Love to both of you!

[Jaha]

So happy to hear things are looking up a bit. I'm glad that they finally had wegs specialists check him out and maybe their txs, will bring him back to a more stable state. Please take care of yourself and keep an eye on your bodies messages. Prayers to you both and may everything continue to improve.