pberggren memorial thread

**LisaT** · 09-14-2014, 01:21 AM

Originally Posted by Alysia

thank you so much, my precious friends, for being here, for your thoughts and prayers and kind words. it means a lot to me and help me so much. I will also let phil know about all the info and support here.
he is still at the ICU. his parents are with him. he is a bit better. pain gone. breathing and sats a bit better. they lower the oxygen from 85% to 60%. he has feeding tube through the nose. they did many tests to try to understand what made him worse in the last days. no results yet. his legs are puffy and he has no energy. they treat him as if he has a flare although they doubt it.
I miss him madly and very scared. but I know that he is very strong, body and soul. please continue to pray. thanks. love you.
p.s. I appologize for not writing at the forum now at other threads. I dont have a free mind even to start reading them. I am sorry. I will try to compensate when things will be more calm.

No need to apologize, Alysia! Everyone knows you are in crisis mode and we're all thinking of both you and Phil all the time.. Nobody expects you to keep up with everything else right now and we know how to reach you if we need you. I feel somewhat powerless and really wish I could do more or say more or help more... So please, if there is anything you or Phil need, anything my Calgary family can do to help, please let me know.... If you want to talk I'm here any time, any day. If this teacher's strike ever ends maybe I could even come see you and Phil while you're in Calgary... Just say the word, whatever you need or might help I will try to do. I know the number one thing is prayers, and I think everyone on here is doing our own version of that every day. Is there a priest or hospital chaplain going to see Phil?

Huge hugs and chicken soup xoxoxo.

**LisaT** · 09-14-2014, 01:30 AM

I just had another thought. Are Phil's Dr's consulting with any of the major Wegs specialists? Even if they are WG specialists themselves, there are so many different presentations and complications it is always helpful to check in with others. If they haven't already, perhaps they could talk to one of the vasculitis foundation docs, or from everything I know thus far I would ask them to call dr. Robert Rothwell in new Westminster bc. He is the one who has saved the lives of a number of those in the Bc support group. He's very experienced and unbelievably thorough. It would be worth a phone call and consultation with him or someone like him just in case they know of or think of another or idea or question or angle that might help. I'm not allowed to call him because he may be an expert witness in my insurance case. Maybe Phil's family or doctors could? Or the vf in Toronto...

**Titus3:2** · 09-14-2014, 02:05 AM

Lisa,markers and lab work can be meaningless.My left lung collapsed from a stenosis in the left bronchus for good in 1988.This stenosis could have easily been seen by an ENT doc in the clinic using a bronchoscope.Even though I was begging for help ,no one looked.By the time pulmonary did a bronchoscopy it was too late,and this is when the WG diagnosis was finally made in the hospital.At that time laser surgery was the surgery of choice to deal with this type of stenosis.The pulmonary doc in charge believed it was to risky because the stenosis was close to my heart.I begged him to do it anyway,but to no avail.When I had the pheumothorax in 2011, I only had one lung.A person can do quite well with one lung as long as it stays healthy. Phil's docs know a lot more than I do.Surely they will do the right thing.Lisa your absence has been missed.

**Psyborg** · 09-14-2014, 03:22 AM

Let Phil know we are pulling for him Alysia. And you of course as well.

**jvilner** · 09-14-2014, 07:54 AM

Alysia stay strong! Phil feels your love from across the other side of the world. Sending prayers to Phil and you!!

**Allisonquast** · 09-14-2014, 10:53 AM

Colin and I also send our prayers to Phil and Alysia! I do hope a vasculitis specialist is being consulted too but he is in great medical care, the foothills is world renowned. They will do all they can!
We are close too so if there is anything we can do we will try to help you Alysia in whatever way we can. Hugs!

**Alysia** · 09-16-2014, 08:09 PM

Thank you, dear friends from the bottom of my heart, for your prayers and thoughts nd precious info. I love you. Phil in not getting beter. Still in ICU. The docs can't tell yet if the meds will work. I am so scared. Freaking out. Yestrday Phil told me that he is going to die. I was crying madly. Then Lisa T helped me to connect with air canada. Thanks so much Lisa. I found an earlier flight. I am sitting now at the airport. Flight to Toronto will be in about an hour from now. Please pray as strong as you can for our beautiful Batman. Thank you for being with us. God bless you.

Sent from my GT-I9100T using Tapatalk