Ok everyone, I need your help. I posted only once before because me and my wife questioned her WG diagnosis. If you look at my past post, you will see the full story, but for those that haven't, here is a quick summary where we are. She has had inflammation in both ears, with infection in both causing holes. She originally took the ANCA and P-ANCA blood test while her first ear was inflamed and it came back negative. After the steroids she took healed the first, when she went off, the second got infected. Was tested for the ANCA and P-ANCA again, then it came back positive for high levels. Her sedimentation rate was high as well on this one too. She has had severe hearing lose and her right ear, and mild on her original ear since it all began. Sinus CT came in negative also. Both the ENT and Rheu have said she has WG, but all of her other test were negative; urine and liver. We still doubt WG so we asked for a biopsy. The ENT today said her ears look fine today. No swelling anymore, but most likely because of the 3 weeks of steroids; 1st week 80 mg, then 2 weeks of 60mg, which she is still on to this day. ENT saw some signs in her nasal passage today and scheduled a biopsy on Monday. She had a x-ray on her chest a month ago and the Rheu thought he saw something, so they ordered a CT on her lungs. The CT results came in today and they saw at least one lesion on her lungs. He is the best of the best in Houston and very hard to get to see, but because of the Grace of God, we are getting squeezed into his schedule tomorrow morning. Now I have made a list of questions to ask him, but want to know what you all think. My wife and I are starting to come around to the WG diagnostic, but still would like to be 100% sure before they start the Rixtuxin infusion. Like I said before, both Dr. said it is, our insurance accepted the claim after only 24 hours that it is WG. Are we crazy for still wanting the biopsy to be 100% sure even though the ENT said it still might not be inflamed enough to confirm? I know after the hours of research that time is of the most importance right now, and my wife and I both want her to be cut down on the steroids ASAP. I just want to make sure that we don't make a mistake by putting this toxic infusion into her bloodstream without asking the final "right" questions tomorrow before we make up our minds. Remember, we already have the biopsy scheduled on Monday. Should we wait? What do you all think? Her Rhem appointment is in 8 hours. Thank you as always.
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