User Tag List

Likes Likes:  0
Page 2 of 3 FirstFirst 123 LastLast
Results 11 to 20 of 24

Thread: Post nasal drip - Imuran?

  1. #11
    Join Date
    Jul 2010
    Location
    see map location in MN
    Posts
    4,374
    Post Thanks / Like
    Mentioned
    16 Post(s)
    Tagged
    0 Thread(s)

    Default

    Quote Originally Posted by annekat View Post
    I've heard and experienced that the sinus symptoms take longest to go away, if they ever do. There may be permanent damage to the sinus and nasal cavities. The symptoms should at least improve over time, if the disease activity is brought under control.
    It is my understanding that the Wegs can often cause permanent damage to the sinuses and this often causes residual symptoms like post nasal drip as the sinuses are trying to calm down or flush out irritation which is essentially scar tissue or damaged tissue. Crusting and nasal bleeding can result from an increase in residual symptoms or a sign of more active Wegs. In cases where it is underlying Wegs activity, the treatment for Wegs will generally reduce such symptoms. There may even be some healing over time of some of the damage to sinuses and nasal passages which can reduce symptoms like post nasal drip and coughing. Using Muccinex or its generic and lots of sinus rinses are the best way to control these symptoms according to my ENT.
    Knowledge is power! Wisdom is using it to make good decisions!

  2. #12
    Join Date
    Apr 2011
    Location
    Olympia, Washington
    Posts
    6,992
    Post Thanks / Like
    Mentioned
    24 Post(s)
    Tagged
    0 Thread(s)

    Default

    Quote Originally Posted by mrtmeo View Post
    Hi Anne,
    Your guifensen suggesting was the thing that helped the most.
    I really think she is going to die.
    she is being neglected by her drs.
    I'm glad the guaifenesin helped. Sometimes you have to be persistent with it. And like drz's doc, my ENT had me on Mucinex (guaifenesin in a tablet) and saline rinses from the very beginning of my sinus issues, which was actually 2.5 years before anyone realized I might have WG.

    I hate to hear you say you don't think your mom is going to make it. I'm forgetting now if you are in Australia or the US, or where.. but in any case, I wish you could find a doc that would take her seriously and not neglect her. If you are near someone else on the forum, maybe they can help you find someone.
    Anne, dx'ed April 2011

  3. #13
    Join Date
    Jul 2014
    Posts
    895
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Quote Originally Posted by annekat View Post
    I'm glad the guaifenesin helped. Sometimes you have to be persistent with it. And like drz's doc, my ENT had me on Mucinex (guaifenesin in a tablet) and saline rinses from the very beginning of my sinus issues, which was actually 2.5 years before anyone realized I might have WG.

    I hate to hear you say you don't think your mom is going to make it. I'm forgetting now if you are in Australia or the US, or where.. but in any case, I wish you could find a doc that would take her seriously and not neglect her. If you are near someone else on the forum, maybe they can help you find someone.
    Hi Anne,
    We are in the USA in Wisconsin.
    I found a recommended neph from a local vasculitis support person and will have to find out if they will monitor her.
    The whole problem is that everything she was going thru could have been prevented with the things that have been well established in the protocol using Rituxan.
    I should have went with my gut instinct and kept feeding her 75gms of protein all along instead of listening to the old outdated literature and others saying low protein preserves ckd.
    If a person has a low hemoglobin, a high protein, high fat, low carb diet can protect it.
    However, with the recent study on diabetic nepthropathy, they were able to reverse the proteinuria using a high fat low carb, minimum protein diet.

  4. #14
    Join Date
    Mar 2012
    Location
    Suburban Columbus, Ohio, USA
    Posts
    2,370
    Post Thanks / Like
    Mentioned
    20 Post(s)
    Tagged
    0 Thread(s)

    Default

    I have no long-term experience with Immuran. Tried it briefly and didn't respond well. However, I have found that taking 10 mg/day of loratedine and 10 mg/2x/day of phenylephrine have helped keep my sinuses dry enough so that I don't have post nasal drip. Both of these meds are OTC.

    I notice that I'm a little stuffy during high ragweed season (now), but I'm not sneezing, blowing my nose, or having post nasal drip.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  5. #15
    Join Date
    Aug 2014
    Location
    Minnesota
    Posts
    55
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Just a follow up.. checked in with a ENT doc about coughing etc. Says my sinus are all good, no problems, told me I had GERD with acid burn in my through. He claimed that GERD is what really causes the sinus problems and coughing etc. While I agree this may be true I now believe I have some kind of infection and will check with another doc. I am still coughing and bring up (sorry) yellow flem. I had this a couple months ago too and was given a Z-pak. It helped but it has come back. Getting very tired of coughing stuff up.

  6. #16
    Join Date
    Oct 2011
    Location
    near Phx, AZ
    Posts
    1,809
    Post Thanks / Like
    Mentioned
    7 Post(s)
    Tagged
    0 Thread(s)

    Default

    loisann, that sounds exactly like my first flare when no one actually knew what was going on. Z paks didn't do much, and by the time they figured that out I was in ICU. Way it went, following protocols and having good docs has helped a lot. Oh, and don't worry about details on here...lol...ie: the thread(s) on boogers! Just wonderfully descriptive and gross!! Best to you.
    Knowing how to think empowers you far beyond those who only know what to think. -NdT


  7. #17
    Join Date
    Jul 2010
    Location
    see map location in MN
    Posts
    4,374
    Post Thanks / Like
    Mentioned
    16 Post(s)
    Tagged
    0 Thread(s)

    Default

    An ENT should be able to see GERD irritation in throat with an endoscope or some times just with mirror looking down the throat if your gag reflex isn't too bad. I have had damge andirritation from GERD several times. Some times I can feel it and other times I was unaware of the damage.

    My WBC usually went up with any sinus or bronchial infections or other type.
    Knowledge is power! Wisdom is using it to make good decisions!

  8. #18
    Join Date
    Jul 2014
    Posts
    895
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    I have an appointment with a Larynologist because an ENT doesn't deal with the entire upper respiratory tract.
    I want to make sure she doesn't have any tracheal stenosis going on.
    She is no longer on the Imuran because it suppressed her bone marrow too much causing leukopenia.

    So far, I think it is the prednisone kicking in her silent reflux and causing inflammation and the peptic ulcer to bleed, but haven't been able to get her hemoglobin up so that a scope would show it bleeding.

  9. #19
    Join Date
    Feb 2014
    Location
    Melbourne, Australia
    Posts
    387
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hi mrteo. Just saw this thread. I have had sinus issues for many years the developed post nasal drip and shortly afterward a most nasty cough that went on for years. Only found out last year that one of the most common causes of chronic cough is post Nasal drip. That was before the WG diagnosis early this year. Had sinus surgery in october last year but that didn't fix things. Then I recently discovered that another very common cause of chronic coughs is GERD or any kind of Gastric Reflux. Something I have also had for ages. Have not heard before that this can cause sinus issues.

    I have been on pred and mtx since early Feb and then a month ago my respiratory specialist also ordered a nasal steroid spray which seemed at first to reduce the post nasal drip. The cough is definitely less now than it was but it does keep flaring up.

    So a steroid nasal spray may be something to consider if your mum is not already using it. But the cough is definitely caused by all this stuff from the sinus (and potentially from the reflux) running into the lungs. My lungs have been examined and found to have no damage at all so it's all coming from elsewhere.
    "Slow and Steady wins the Race"
    All the best, Inge

  10. #20
    Join Date
    Aug 2014
    Location
    Minnesota
    Posts
    55
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    They did use a mirror to look at my throat. That is how he came up with GERD. Problem is I used to have that and I knew I had it. I don't feel I have it now. Hardly any gas in a very long time no matter what I eat. I was having a very, very bad cough and coughing up a lot of flem. I feel that is what gave me the sore throat. I didn't feel the Priloscec was helping and stopped. Cough has been getting better on it's own but went to general Pract. today to get another Z-Pac. This time was told if this does not work it is not bacterial but I am stuck with it. Hoping to feel better!

Page 2 of 3 FirstFirst 123 LastLast

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •