Quote Originally Posted by Kim McCormack View Post
Hi Mrtmeo (again, my stenoses are small and many. Certain lobes have gone but it has been over a very long period of time (decades) and so the working lobes have kind of overcompensated and got bigger. There has been no decline over say six or so years and I do everything I can to keep it as open as possible. I work in a quite demanding job full time and the only indication to the outside world is that I get puffy going up stairs and if I am exherting. My breathing sounds a bit strange and I have to be so, so careful with chest infections. My worst problem with chest is often getting docs to take what I am saying on board. I often end up in confrontation just to get properly treated.
It is so sad that just getting drs familiar with vasculitis for earlier diagnosis is hard enuf without fighting pride and arrogance to get treated properly.