Here is a link to a list of vasculitis specialists provided by the Vasculitis Foundation. VF Medical Consultants
Your local doc could consult with one of these docs to make sure you're being treated in accordance with the latest protocols. You could also arrange a visit to one of them if your doc and health insurance will provide a referral.
The best known vasculitis centers in the States are (in no particular order) Cleveland Clinic, Mayo Clinic, and Johns Hopkins.
Good luck.
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
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