Originally Posted by
Rose
Greg I see you were diagnosed in 1999. So Wegs has attacked your kidneys 15 years later? I went undiagnosed for 17 years as Wegs had attacked my gastrointestinal system but this was only confirmed when Wegs dissipated and attacked my sinuses, lungs, kidneys etc. When the doctors saw that my gastro symptoms improved drastically after I started treatment for Wegs, a colonoscopy was performed and Wegs was found....they never looked for it before!!
Those of you who do not have kidney involvement should be aware that it COULD happen one day and early detection is vital. Kidney involvement in the early stages is usually asymptomatic but urine test strips would inform you if all was not well with your kidneys. I think all Wegs patients should do weekly urine test strips to ensure early detection and for those with known kidney involvement, it would reassure you that all is well and you are still responding to treatment.
Rose
Rose,
Yes, Wegeners has attacked my kidneys again 15 years later. My kidneys were also attacked back in 1999.
Greg
Diagnosed July 23, 1999
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